CHD Adult
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Transposition of the Greater Vessels
Hi I had the OH Mustard procedure done at 8 months old. I never had the secondary surgery and never had any heart issues. This past March I was in heart block and had a pacemaker implanted then in September I was diagnosed with heart...
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Heart issue without diagnosis
Hi all, I am 54 years old and I have a critical health condition that I need some help and advice. I had multiple visits, 5 times total, in the last couple weeks to the emergency room with very severe chest pain and a level of troponin reaching each...
read morelatest replyBL1970, January 17, 2019 5:08pm EST
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Open Heart Surgery Post Op
Hi, I had open heart surgery in May (2018) to fix a hole in my heart that I did not know I had. Prior to surgery, I was not able to walk more than ten steps without stopping to rest. Now, I am physically feeling so much better. But,
read morelatest replyBL1970, January 17, 2019 5:56pm EST
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Post Surgical depression
I would like to find out how people deal with post surgical depression. I am 42yrs old, was diagnosed in 2004 with a bicuspid aortic valve and a pfo. Had my first valve replacement the same year followed by a percardectomy 2 yrs later. I did experience...
read morelatest replyivebeenivan, December 19, 2018 8:59pm EST
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Newly diagnosed
Greetings. I’m 42 years old and recently diagnosed with hole in my heart and mitral valve regurgitation. Valve Leakage is at 51% and I’m exhausted just laying here. I’m scheduled for a catheterization next week. I wish...
read morelatest replyAmbassadorDN, November 28, 2018 5:20pm EST
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Death anxiety - Singel ventricle heart.
How do you start the post off this topic? I'm not sure. I'm Milo. I'm 24 and I live in Sweden. I was born with a singel ventrical heart, VSD. While growing up I have never seen myself as the sick-kid. Or viewed myself other than completely...
read morelatest replyJamesPL, October 24, 2018 9:18pm EST
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A little inspiration...
There is a facebook page called Heart to Heart dedicated to heart patient survivors. Recently the post below appeared and I found it highly inspirational! Hope you do too! Here it is... Hello everyone... that's me, on the bass guitar in the white...
read morelatest replyAmbassadorDN, October 8, 2018 8:55pm EST
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Nobody seems to understand, not even the doctors!
I was born with CHD, Aortic prolapse & regurdutaion. Back in 1967 they called it a heart mummer. As a child when my heart would race, and I would get dizzy and stay exhausted, I was told I was hyperventalating. As an adult, my mother...
read morelatest replyKatMarie, October 7, 2018 2:40pm EST
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Cardiac structural impairment
i have finally been diagnosed with what they Doc’s a Brigham and woman catagorize as irreversible “permanent cardiac structural impairment” resulting in afib and aflutter finding very difficult to control. All other aspects such...
read morelatest replyJamesPL, September 2, 2018 11:45am EST
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Heart Health Survey
Are you an adult who has been diagnosed with heart disease or a heart condition? If so, we need your assistance to complete a survey that will help us to understand health behaviors of those with cardiovascular health issues. We hope that
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