CHD Adult
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Heart Health Survey
Are you an adult who has been diagnosed with heart disease or a heart condition? If so, we need your assistance to complete a survey that will help us to understand health behaviors of those with cardiovascular health issues. We hope that
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Depression, healthy living and risk of being pregnant with CDH
When I was 5 months old the doctors dicovered that one of ateries was connected wrong. they gave my parents a 50% chance of living. Now I am 22 years old basically living a normall life. I have a pretty serious boyfriend and I hope to become a mom one...
read morelatest replyJamesPL, June 6, 2018 8:56pm EST
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Other HLHS Patients
Hi my name is Becca and i have HLHS and would really like to meet others like me. I've never me anyone else like me, and it seems like no one in this world understands me. Please let me know if you're out there.
read morelatest replyjlhyde85, May 25, 2018 4:59pm EST
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Aberrant Subclavin Artery
I am looking for others who were born with an aberrant subclavian artery. Mine is a Right Aberrant Subclavian Artery. Due to symptoms, I am supposed to have corrective surgery when they do my blocked carotid artery, also on the right.
read morelatest replyAHAASAKatie, May 24, 2018 9:15am EST
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Did you know you can get email notifications of activity in your favorite forum?
Did you know you can get email notifications of activity on your favorite forum? However, to receive them you must update your Notification Settings. Please go to Notification Settings and make your selections at the top...
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What "things" do you tell other people?
This past weekend I had the chance to spend precious time with my best friend from college who recently survived a catastrophic illness and is having to completely change her entire life and learn to live a new way; managing new physical limitations...
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What Keeps You Going?
I have been noodling a topic for quite a while and I would love to have everyone's perspective. Now, I want to know what keeps you going through the dark times? For me, the answer changes on a day-to-day basis: Faith, my children, my parents,...
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Anomalous Right Coronary Artery
I was diagnosed with anomalous RCA when I was 35 yrs old. At 41 (three weeks ago) I had surgery to correct it due to various episodes of shortness of breath, and chest pains. I am in my third week of recovery, and hope to find someone with a similar condition,...
read morelatest replyJaviero, April 23, 2018 10:29pm EST
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Any HLHS marathoners?
Has any HLHS patient here ever completed a marathon? If not, have you done other major physical challenges (half-marathon, triathlon, 50+ mile hike)? I'm curious about other people's experiences!
read morelatest replySpencer, April 16, 2018 3:46pm EST
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Action Needed: Account Maintenance for Support Network Enhancements
We are in the Midst of Enhancements! We are working diligently to enhance the Support Network community and need you to take a few Account Maintenance actions to enjoy the benefits. Use this link to access the step x step instructions you need to...
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