CHD Adult
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Adult Atrial Septal Defect Repair - How do I find the right CT surgeon?
I have recently been diagnosed with adult Atrial Septal Defect. I have a 1.8 CM hole that is near one of my heart valves. I've been told that I need open heart surgery to patch the hole. Initially, I alternated between being terrified...
read morelatest replyAmbassadorC, September 17, 2019 8:16pm EST
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Thank You to those that participated, Volunteers Still Needed for Cardiovascular Study
VOLUNTEERS NEEDED for CARDIOVASCULAR RESEARCH STUDY Hello, my name is Thomas V. Parinello, and I am a doctoral candidate in the clinical psychology program at Fielding Graduate University. I am conducting my dissertation research on cardiovascular...
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Aortic Valve Replacement - Recommended Hospitals?
Hi Everyone, This is my first post. I was diagnosed with Bicuspid Aortic Valve and an "enlarged" aorta 4 days ago. I had an echocardiogram that diagnosed it and a CT scan yesterday for which I am waiting for the results The way I understand...
read morelatest replyricbruce, September 10, 2019 12:49pm EST
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Anomalous Left Coronary Artery Arising from Right Sinus of Valsalva
Im trying to find other people who have what I have. There is not much info out there. I am 46 and was diagnosed with this after having a heart attack they can't seem to explain. I have no answers. The day after I was
read morelatest replyAHAASAKatie, July 16, 2019 9:59am EST
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BAV, still in diagnostics, emotional rollercoaster
Hello all. I've recently been diagnosed with a bicuspid aortic valve congenital defect. I had been having angina (stable) for 4 months, then suddenly had an incident of unstable angina at work that dropped me to the floor and I experienced...
read morelatest replytarajb, August 7, 2019 9:40pm EST
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Fungal Endocarditis
Hi everyone, my name is Patricia, I'm from Brazil. My brother was born with a bicuspid valve. He is 43 years old and had aortic valve replacement. But he had fungal endocarditis. Aspergillus Flavus. We know it is a serious illness. This fungus
read morelatest replyAmbassadorC, July 9, 2019 5:45pm EST
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Volunteers Needed for Cardiovascular Study
VOLUNTEERS NEEDED for CARDIOVASCULAR RESEARCH STUDY Hello, my name is Thomas V. Parinello, and I am a doctoral candidate in the clinical psychology program at Fielding Graduate University. I am conducting my dissertation research on cardiovascular...
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Baby it's HOT Outside !
As some of you might know, I live in Florida and we are having a crazy HOT Heat Wave! I am finding it very hard to want to go outside and stay active. I think this article has some helpful hints and encourage our members to take a few minutes...
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Please Keep Sharing!
There have been so many wonderful conversations on the Support Network these last few weeks. New and returning members sharing what is happening in their world! We wanted to recognize you, say thank you and encourage you to keep inspiring each other! Best...
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The Smart Searcher: A Guide to Online Medical Advice and the Support Network
Good morning everyone, I am so excited to see our community growing these last few months. And, I have read some powerful, supportive and educational conversation threads. I do need to provide a reminder that it is imperative to the safety...
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