CHD Adult
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Tetrology of Fallot
Hey gang, I was born on January 1, 1974. At first the only issue was a tracheo-esophageal fistula. Then at about 6 months of age, the GI specialist noticed a blue/purple-ish hue under my nails. He then asked that my mother see a cardiologist. "What...
read morelatest replyAHAModerator, June 8, 2021 5:27pm EST
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Exciting Support Network Updates
To the Support Network community, In case you missed our previous post, there are some exciting changes coming to the Support Network! We’re adding great new features that will strengthen the community as a whole and provide a better experience...
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My Story: Transposition CHD, 3x Open Heart Survivor.
Hi everyone, This is a big step for me to reach out and share my story. I've always kept my heart condition a secret and never met anyone who has Congenital Heart Conditions, but now is the time in my life when it's going to help others. Hopefully...
read morelatest replyAHAModerator, June 3, 2021 9:28am EST
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How long for sternum to feel normal after open heart?
My open heart was 4 months ago. My sternum doesn't really feel stable. It hardly ever pops (maybe 4 small ones ever.) But when I lie on my side to sleep, and need to roll over, it feels, well, not solid. I don't get stabbing pains. But it aches....
read morelatest replypdxmike, June 3, 2021 2:59pm EST
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A new and improved Support Network is coming!
Be sure to check out the new blog to learn about exciting upgrades coming soon!
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Congenital Heart Defect - Transposition of the Great Vessels - Heart Transplant List
Hello All! I'm 43 years old and I was born with transposition of the great vessels (tgv). I also have a **** in my heart which created a way of compensation so it was never corrected. I also was born with other anomolies. I have complete...
read morelatest replyAHAModerator, April 23, 2021 9:02am EST
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Insurance for CHD adults USA
Hi! I'm a Swedish citizen living currently in Sweden. However I'm a RN, BSN soon to be CRNA and I'm planing to move to the US to work a few years. I'm 26 and I've had the Fontana procedure done when I was young, so currently living...
read morelatest replyAHAModerator, April 14, 2021 8:50am EST
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Greetings!
On March 27, 2005, I had my first stoke. The doctors were not able to figure out why. I was 29 years old. On May 11, 2019, I had my second stroke. The doctors were able to figure out why. I was 29 years old. After the second...
read morelatest replyAHAModerator, March 22, 2021 8:53am EST
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ANOMALOUS RIGHT CORONARY ARTERY
Hello Everyone, I am Tee in one day my entire life has changed. Due to symptoms like palpations, heart skipping beats, dizziness, headaches, I went to see a cardiologist. I had a CTA 3D of the heart on Friday morning and was
read morelatest replypdxmike, May 3, 2021 9:30pm EST
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NEW: Adult born with TOF
Hello everyone!! In 1981, my fraternal twin & I were born two months premature, with only me having Tetralogy of Fallot. Thanks to my mother requesting a 2nd opinion, Dr. Kirklin & Dr. Brunswick performed my Blalock Taussig
read morelatest replyAHAModerator, February 25, 2021 5:33pm EST
