CHD Adult
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Just Saying Hello!
Hello Everyone! I am new here and I just wanted to introduce myself. My name is Stephanie and I am a 33 year old CHD Survivor. I was born with Tetralogy of Fallot in 1987 and had my corrective repair in 1990. I was fairly asymptomatic...
read morelatest replyJamesPL, May 24, 2020 9:44am EST
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Quadricuspid Aortic Valve
Hello! Eight years ago I was diagnosed with Quadricuspid Aortic Valve it's pretty rare and I was curious if anyone else on here has been diagnosed with the same condition. I've been monitored by cardiology ever since but my most recent testing...
read morelatest replyjcowin, May 11, 2020 11:04am EST
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Bicuspid aortic valve, high blood pressure, 50% blockage...now low heart rate.
Hi everyone. I'm new to the site and looking for any guidance/suggestions from others who may have been through similar. 3.5 years ago I was diagnosed with bicuspid aortic valve with mild stenosis and regurgatation. There is family history and...
read morelatest replyGRJB7747, May 12, 2020 3:24pm EST
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Young Adult Survivor Needs our Support
Please share support with this Tetralogy of Fallot patient, she is younger and needs our support. If you want to research her condition, here is what we have regarding Tetralogy of Fallot and what she is managing. Thank you...
read morelatest replyKimsue, May 29, 2020 4:56pm EST
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Ventricular tachycardia following aortic valve replacement
Hi all, My dad had his AVR procedure in 2011 and about a year later had an ICD put in due to an episode of ventricular tachycardia. He has been fine since up until this past week. He had an episode of v-tach that resulted in a drop in BP and subsequent...
read morelatest replyAmbassadorC, February 15, 2020 6:23am EST
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Life expectancy following aortic valve replacement
Does anyone know what the life expectancy is following aortic valve replacement with a mechanical valve? I know the valve itself can last up to 20 years but for those patients who do undergo an AVR, do they have a normal life expectancy?
read morelatest replyJamesPL, February 9, 2020 2:15pm EST
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Technological Advancements
I often point to advances in technology as reasons to be optimistic about our care going forward. Along those lines, I have been researching the consumer electronics show in Las Vegas which is going on right now and is a showplace for the latest in technology....
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Another positive exercise study
Muscle Mass Linked to Heart Health. New research that reviewed ten years of health data concerning over more than 1,000 adults indicates that men and women with more muscle mass in middle age were less likely to have hypertension, diabetes, and...
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Wishing our Community a Healthy and Happy New Year!
Thank you for a great 2019 and looking forward to an even better 2020 loaded with inspiring conversations and support. Best Katie
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