CHD Adult
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Newly diagnosed
Greetings. I’m 42 years old and recently diagnosed with hole in my heart and mitral valve regurgitation. Valve Leakage is at 51% and I’m exhausted just laying here. I’m scheduled for a catheterization next week. I wish...
read morelatest replyAmbassadorDN, November 15, 2018 10:40am EST
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Death anxiety - Singel ventricle heart.
How do you start the post off this topic? I'm not sure. I'm Milo. I'm 24 and I live in Sweden. I was born with a singel ventrical heart, VSD. While growing up I have never seen myself as the sick-kid. Or viewed myself other than completely...
read morelatest replyJamesPL, October 24, 2018 9:18pm EST
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A little inspiration...
There is a facebook page called Heart to Heart dedicated to heart patient survivors. Recently the post below appeared and I found it highly inspirational! Hope you do too! Here it is... Hello everyone... that's me, on the bass guitar in the white...
read morelatest replyAmbassadorDN, October 8, 2018 8:55pm EST
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- 10 replies
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Nobody seems to understand, not even the doctors!
I was born with CHD, Aortic prolapse & regurdutaion. Back in 1967 they called it a heart mummer. As a child when my heart would race, and I would get dizzy and stay exhausted, I was told I was hyperventalating. As an adult, my mother...
read morelatest replyKatMarie, October 7, 2018 2:40pm EST
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Cardiac structural impairment
i have finally been diagnosed with what they Doc’s a Brigham and woman catagorize as irreversible “permanent cardiac structural impairment” resulting in afib and aflutter finding very difficult to control. All other aspects such...
read morelatest replyJamesPL, September 2, 2018 11:45am EST
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Heart Health Survey
Are you an adult who has been diagnosed with heart disease or a heart condition? If so, we need your assistance to complete a survey that will help us to understand health behaviors of those with cardiovascular health issues. We hope that
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Adult congenital heart
My Husband was diagnosed with a widow maker in February. He had a heart cath. He has a 60-70% blockage in his main artery. They did not stent it. Does anyone else have this problem? Thank you.
read morelatest replyAHAASAKatie, August 28, 2018 10:38am EST
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Have you taken the Support Network Survey Yet?
We want your opinion! Please take the Support Network community member survey, today! Should you choose to participate, you will be entered into a randomized chance to win one of 5 Support Network canvas bags. Thank you so much...
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More personalized guidelines for treating adults with congenital heart disease
American Heart Association News (Morsa Images/Getty Images) The growing population of adults with congenital heart disease could soon begin to see more personalized care, according to new guidelines released Thursday. Diagnosis and...
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Anomalous Right Coronary Artery
Hi, my name is Isis Howard. I would like to talk to anyone who has been diagnosed with an Anomalous of The Right Coronary Artery.
read morelatest replyPeggyTN, September 12, 2018 1:46pm EST
