CHD Adult
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saying hello (tetralogy of fallot mom)
Hi Everyone, I wanted to take a minute to introduce myself on this particular channel on the support network. My name is Jen, and I have tetralogy of fallot. I'm 33 and I had an open heart surgery at 2 to help my pulmonary stenosis. Then...
read morelatest replyAHAASAKatie, March 12, 2019 9:35am EST
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Open Heart Surgery to correct an Anomalous Right Coronary Artery.
Hello forum readers, I'm Teddy and just joined the AHA Support Network. Below is a copy of my recent Facebook post that I shared for the first time after learning I have ACHD, and thought it would be a good copy to introduce myself to this group. ...
read morelatest replyTeddy51, March 22, 2019 9:45am EST
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*Insert interesting title here*
Hi there, my name is Pete and I've lived with heart troubles all my life. At the age of 9 I had my first operation and then at 19 I had an artificial aortic valve installed. A little while later that failed and I had to have it repaired -...
read morelatest replyDolphinWrite, February 15, 2019 1:58am EST
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Today is National Wear Red Day in honor of American Heart Month and Go Red For Women!
This is Clemi, she Goes Red in February each year. What are your plans to Go Red For Women today? Learn more about the awesome campaign here!
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We are Growing and Looking for Volunteers to Help Us!
Do you love the Support Network? Have you enjoyed reading the stories of survival, blogs and learning more about the people who make up our caring community? We are expanding our volunteers to help us grow our conversations, create new discussions...
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Chest pain and anxiety after surgery
In 2017 I had a tia that they said was caused by a vertebral artery dissection ( don’t know what caused that) after that they found I had a large atrial septal defect which was closed in September of 2017 and I have sinus bradycardia . Sometimes...
read morelatest replyDolphinWrite, February 15, 2019 2:07am EST
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Trust your body and your instincts!
I was born with a bicuspid aortic valve and I was diagnosised at 2 years old with aortic stenosis. The cardiologist told my parents that I was not to join any competitive sports to keep my heart rate down. As a child with 4 other very active, perfectly...
read morelatest replyDolphinWrite, February 15, 2019 2:15am EST
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Did you Know?
Did you know we have a feature on the site that emails you when someone responds to your post? If you have not set up your "notifications", please take a minute and do that. If you have questions, I am happy to help you, just email SupportNetwork@heart.org....
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Transposition of the Greater Vessels
Hi I had the OH Mustard procedure done at 8 months old. I never had the secondary surgery and never had any heart issues. This past March I was in heart block and had a pacemaker implanted then in September I was diagnosed with heart...
read morelatest replyAHAASAKatie, January 22, 2019 8:51am EST
