"Hello! In August of 2018, I was diagnosed with a Bicuspid Aortic Valve with very trivial leakage. I have been an anxious mess since then, and have had the worst thoughts. I had an echocardiogram at St. Francis hospital in Roslyn NY, and have a few questions. Firstly, how at risk am I for cardiac events like fainting, cardiac arrest etc? Second, the doctors told me of no other issues, so does that mean there is still possibility of other cardiac problems? They took 1 ekc and 2 echos, and that is all that they told me. If anyone could please get back to me id be happy to know, thank you so much!"
Simply having a bicuspid valve does not put you at any greater risk for sudden cardiac events. Bicuspid aortic valve disease is something that many patients never know they have until it is found during an echo for other reasons, many times much later in life.
The main risk with a bicuspid valve is progressive stenosis or gradual narrowing of the valve. The best way to monitor this is with regularly scheduled echocardiograms and visits with your cardiologist. This will allow your cardiologist to see the rate of change in your valve and discuss the severity and frequency of your symptoms. It is not necessary to treat a bicuspid aortic valve until the leakage is moderate to severe, and symptoms (shortness of breath, dizziness) are significantly affecting quality of life. With any luck this will be many, many years down the road for you. Thank you, Nurse Tessa