What's really happening??I am very reticent to even say how I have been doing, for all I've gotten from others, including
the medical community is 'quit your whining. After all, you ought to be grateful you are doing
as well as you are".
therefore, I walk around, afraid to even open up and tell anyone how I'm doing, even when they
ask. I've learned that most don't even want to know, and are sorry they asked!
I'm tired of fighting, of trying to get some recognition of what all I'm experiencing. I've had to
walk out on more than one doctor since the stroke, because of their refusal to even hear
what I'm saying. They will not acknowledge that I'm even going thru anything at all. After all,
what do I have to b - - - -h about? I'm walking fine, I can talk, I can move my arms & legs,
what's the problem here??
Therefore , I will not go into details of my experiences, for I don't trust any sort of 'bulletin board.'
I'm so fed up having to justify my complaints, trying to convince anyone what has and is still
happening. It's nice if all of the others find releif here. I woudln't even chance it. I even resorted to
calling my local aha and asked if they had any lists of resources of therapists well schooled in
stroke survivors. I was promised a return call by the next day. Next week,no call, following week,
no call still, and it goes on and on, just like that. You ask, why don't I call them again?? Because
I've wasted more time following up on so many calls/issues with promises of getting me the
requested info, and never getting anywhere, that I've given up. that was my last hope of any
kind of resource.
I am not even going to try. Might as well be one of those 'ingrates' I'm accused of being!!