trying to live a long & happy healthy life with CHFWhere do I start? 38 years ago I was born with a childhood cancer called neuroblastoma. At the age of 5 years old I was in remission. 20 years later I gave birth to my son and the month following his birth I was in congestive heart failure with an EF of 13%. After alot of hard work and determination I got my EF back up to 55%. When then were told we could have more children. Well, as soon as we started to ween me off my Coreg my EF dropped to 20% quickly. At that point we knew no more children and chose to adopt. in 2011, my cardiologist suggested I have a defibrillator implant put in to my new PVC (premature ventricular contractions). all went well for a few years and in 2013 I was back in heart failure with an EF now at 35% the doctors recommended I now have a bi-ventricular pacemaker put in. I have been doing good and now starting the process of a possible heart transplant after a recent visit to the hospital and finding my EF at 15-20%.
So as a mother to two beautiful children and a very supportive husband and many supportive friends, I have made it my goal to live as long as I can living a happy and Healthy life. It was definitely a shock to hear the words heart transplant.