Jan 12
AmandaWisser
AmandaWisser , Posted on SUPPORT NETWORK Blog

Team Julia

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Julia was diagnosed at 2 days old with Tetralogy of Fallot. By the time she was two months old she would undergo her first open heart surgery. Her oxygen was dropping rapidly even on 100% oxygen support. She was given a stent and a patch over where the pulmonary valve should be. The hope then was that she would survive into late teens before needing the next surgery. Unfortunately this was not the case. When she was 8 years old she would have a second surgery. The summer between 2nd and 3rd grade proved to be very difficult. She was growing more tired and having a hard time keeping up with her peers. So they found that the right side of her heart was enlarging due to being over worked. They gave her a full pulmonary valve replacement. She now has an artificial biological valve made of cow and pig valve. We now hope to be able to wait another ten years before her next surgery if we have no more surprises. She is a beautiful and smart little girl who loves ice skating and playing with her Lilo and Stitch dolls. She is her family's heart hero.

4 Comments
  • JamesPL
    JamesPL,

    Amanda,

    What an amazing girl facing such a major obstacle and still persevering. Makes me feel ashamed for any "problem" I've ever had. We are so fortunate to live in a world of technological advancements that makes this treatment available. This will continue to improve along with the increasing hope that comes with it. I am sure she is a hero to more than her family. I wish her and you and your entire family all the best!

  • AHAASAKatie
    AHAASAKatie,

    Hi Amanda, We love this story and are always looking for CHD families to work with. If you are interested in talking with our national communications team, can you please email us at SupportNetwork@heart.org ? Thanks Katie 

  • AHAASAKatie
    AHAASAKatie,

    Hi Amanda, We love this story and are always looking for CHD families to work with. If you are interested in talking with our national communications team, can you please email us at SupportNetwork@heart.org ? Thanks Katie 

  • Maxin
    Maxin,

    Hi Amanda. This is one special girl! Best of luck to her and her wonderful family. God Bless💜

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