May 2
User71853
User71853 , Posted on SUPPORT NETWORK Blog

Struggling to Cope/CHF/Diastolic Relaxation Abnormality

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Struggling to Cope/CHF/Diastolic Relaxation Abnormality

It seems the nightmare has been with me all my life............by this I mean the instinctive knowledge that there was something wrong but not knowing how or where to turn to get answers............My journey started in 2013 with a major gas leak on the job--Call Center Site---the first week of training----EKG's that were run showed the Left Atrial Enlargement but none of the E.R. doctors ever seemed to be fazed by it-----------now as it turns out----there was significant damage----2014 I had a Mycardial Infarction with Weeping Edema, Cellulitis, Staph Infection but due to no insurance they just kept me for a week stabilizing my symptoms. 2016 while in College I was diagnosed with Congestive Heart Failure due to Enlarged Heart and Fluid in my Lungs but no one seemed to care to find out why but as once again I had no Health Insurance---it wasn't surprising. Now here it is 2018 and I finally have a specific diagnosis, Diastolic Relaxation Abnormality. This is the explanation I have been fighting to figure out for why I had the Congestive Heart Failure. Now I have it and I am just blown away with what I have overcome since 2014. I have had no Family Support since the beginning. It has been lonely and scary. Now it's just lonely. I feel immersed in this bubble of ever impending doom and resigned in my death trap. I'm angry. I don't understand. I want more time as I finally got my IT job. I am currently working from home waiting for the Cardiologist appointment on May 24th. I feel like I am watching everyone else get to have a life and meanwhile, my life is slow slipping away from me.

1 Comment
  • AHAASAKatie
    AHAASAKatie,

    I am so so sorry that this has happened to you! Thank you for sharing with us. Have you read through the Heart Failure section of the site? I do think you might be able to find some inspirational stories there. Best, Katie 

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