Sarcoidosis
I will try and make it short. I have been dealing with this heart failure a year and a half. They found sarcoidosis in my lung. They did a pet scan and then never really told me the results. So recently I was looking at my medical records online. There it was, sarcoidosis in my heart. I was upset that they didn't tell me. I realized why they were hesitant when I looked up cardiac Sarcoidosis, which is what they call it. Prognosis 2-5 years. Prognosis is bad. I have known that it is bad. I can walk about two blocks. I was wondering if anyone out there has been diagnosed with sarcoidosis?