Aug 10
Michael of Watertown
Michael of Watertown , Posted on SUPPORT NETWORK Blog

One of kind heart disease that is total medical mystery

No cure very unique symptoms  three separate fields of heart related issues. First when standing for even a short period of time my heart rate skyrockets anywhere from 119 beats per minute to 160 beats per minute. Second thing all in same parameters my blood pressure readings crash causing me to have near syncope incidents I have been hospitalized 6 times for this condition and have seen 7 cardiologists in the past 16 years. When looking at past history of this disease I did at one have a normal blood pressure readings in 2009. Ok the third parameteris upon standing my blood pressure monitor registered irregular heart beats to. Now yesterday I had a consultation with my 4th cardiologist and I was very optimistic because earlier at another appointment with him he told me of 3 possible options for this disease. But as it turned out none of them can be used to stop very unique heart disease first was a pacemaker but that can only be used for a slow heart beat my is the exact opposite. The second option was a implanted defibrillator into my chest but that only works on lower chambers and my problem is in the upper chambers so that eliminates the second option. The last alternative was to shock the heart to correct the rhythm but that also is for slow heart rates again the exact opposite my heart accelerates. Then when we finally got down to no options left the cardiologist said he seen thousands of patients but he has never come across such a unique case as mine then told the prognosis there is no cure for this disease and eventually it is going to kill me so now you know the reason of the story except for one part in my living will I be donating my body to the Mayo Clinic or the University of Minnesota both heart research centers. 
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