New MemberHello to all surviors and or caregivers.
My name is Cassandra. I have been looking for a Support group and decided to try this one as I do have some good days and some bad days.
My journey started in November 2015. I was sitting at my work desk working and my fingers was so swollen that I could not bend them and was painful. I immediately called my PCP and informed him and he asked that I come right in. He examine me and asked that I go directly to my Cardiologist. I could never figure out why he would send me to a Cardiologist but as I was examined and had an Echocardiogram, the Cardiologist provided me with results of Severe Cardiomyopathy and Cardiac Heart Failure with an Ejection Fraction of 30%. He had a nurse to come to my house to apply an external defiberllator that I had to wear for 3 months. This was so hard to adjust to. I did not understand what had just happened. So I scheduled another appointment with another Cardiologist for a second opinion. I was given the same results, however the Nurse Practioner whom saw me started to panic and that scared me. She stated she didn't know how I walked in there with an EF so low. I was then scheduled to see a Surgeon that evaluate me as well. He was great in explaining what was going on. He gave me the plan that had no option if I wanted to live. I had a LVAD implanted on March 1, 2016. This was the hardest pain I had to experience as the recovery was hard. My chest stayed sore for a couple of months and my incision is still sensitive now. I am having difficulty with staying on a healthy diet. I am also having depression and memory loss. I try to do the things I use to do, but many complications set in like short of breath, fatigue, and dizziness. I was informed by my Cardiologist that I had to go out on disability due to I could not work anymore. Wow, I said. Are you sure? Yes, he replied, but now I really was lost as I worked from home and sat at a desk all day. He counted it all out. Confusion sat in and still have not been understood. So I just asked him again....Why can I not work? Answer very plainly put. "You have Heart Failure, Stage C, and 20% EF. I still did'nt undestand because the research showed many with my problem contiued to work. Now I am trying to figure out what I am to do. I am 50 years young and was in the middle of my career. It is all gone. I have no one who really look at my situation seriously. Now that I am up moving around and trying to do things, many think I am all well. SO I decided not to share with family and friends of my bad days, but many days make me want to go to hospital. I just need great support and information. I am usually the person who support everyone else and encourage them, but now I need it all.
Looking forward to this support team.