Jan 23
dbrw
dbrw , Posted on SUPPORT NETWORK Blog

My new journey or the second half

I thought I was having asthma problems and stopped by the local clinic for an inhaler. I live in a small town of 1600 people.  They listened took blood and then a chest x-ray. The doctor came in and said that my lungs were ok but that my heart was enlarged and had fluid around it. The GNP was in the 600's. They sent me to a nearby town the next week for a stress test and an echo cardiogram. The hospital did the echo but said my heart could not handle a stress test.  They said I was in atrial fibrillation with a pulse of 130 and an ejection fraction of 15%. They sent me to the next town to a cardiologist the next day. He looked at the records did a ekg and told me I needed a TEE cardioversion and put me on 5 meds. Lasix, potassium, Tropol, Eliquis and Lisinopril. I went for the test no clots were found so they shocked my heart into rhythm. As I came out of the anestetsia I said "The half time was delightful" I have no idea where that phrase came from! But I take it that I am in the second half now.  I dont see anyone for 2 weeks and I just sit and worry about what I am feeling and if it is normal and will I be alright. I have a hard time brathing especially at night. I am exhausted all the time. I feel lost.
8 Comments
  • carol1950
    carol1950,
    I know what you are going through as I was having a hard time breathing and was sent to a heart Dr. and they did tests and told me I have congestive heart failure and pulmonary hypertension. And they also told me it is so bad that I can't do anything. No exercise, no lifting over twenty pounds, nothing excessive at all. I feel worthless so much of the time and also get depressed. My fathers parents and my father all died around age 71 or 72 with congestive heart failure so I stress over it a lot. But I am trying very hard to just live each day and try to enjoy life as much as I can with my limitations. My husband passed away two years ago and I was diagnosed with this a year after his passing. But I am fortunate I have kids and grandkids and a lot of friends so I have a lot to live for. Some days are better than others but you just have to look at the things you can be thankful for and have faith in God that he will see you through this and will never leave your side. Carol
  • sunglows
    sunglows,
    My story starts around the holidays of 2016..Thanksgiving actually. I thought I just had a bad cold. By Christmas I knew I had more then a cold but refused to go to the Dr. As days went on my breathing got so bad I though I was going to have a heart attack. I finally went to Urgent care and they treated me for pneumonia which I did not have. On New Years day, my feet swelled up and I could not breath, little did I know I was in heart failure. My sister who is a NP told me to get to the hospital, and if I did not listen to her I may not be here today. 3 days in the hospital to be diagnosed with dilated Cardiomyopathy, and my world turned up side down. Its been 2 weeks for me and I am not even close to adjusting to this. My whole life stopped as I knew it and I am struggling with depression as well. I work FT because I was told you can not get disability for this and the stress of 40 hours and being so tired has me even more unable to try to come to terms with this disease. It did not help to read about the life expectancy either. How do you learn to adjust to this.....when you do not have a clue.?
  • Raiz_Ali
    Raiz_Ali,
    Feel sorry for your suffering. I think you'll start feeling better as soon as you gain more and more knowledge about your disease. Initially its always like a shock as it happened to me on my Heart Attack Dec2016. I have seen people ejection fraction improved with medication and exercise. Don't lose heart things get better all the time.
  • zubercm
    zubercm,
    Hi!! hang in there!! Was this your first "electric shock"?? Yes, it's kind of weird..but great to be back in sinus rhythm....as an " AFIB Queen". ' I have learned to even joke that the shock didn't curl my thin hair!! Yes, I am short of breath because of asthma as well as mitral valve problems! Things will start looking up as you gain more understanding of your heart. You are not alone in your feelings. In the meantime, rest, and enjoy the small blessings of each day. Cathy
  • Momheart
    Momheart,
    What is your prognoses with a heart ejection fraction of 14. Do you have a defibulator? Blessings and prayers
  • cdameron
    cdameron,
    I too had what I thought was Asthma that was actually a heart attack! I knew so little about what was happening to me that I had a steep learning curve. My heart attack was January 2016. I, by no means, have satisfactory answers for my issues or yours but I gathered a lot of information which has helped me cope. I am one of those..."just give me the bottom line"... kind of people and as much as I ask no one seems to know what the bottom line is. So, I just call everyday my new normal. Yesterday I had another Test to view my heart under stress... A chemical Stress Test. It was stressful alright so I guess it met it's expectations as tests go. No results yet not until late February. I find going to the Doctor is not my favorite thing so I savor the weeks I have no appointments. Everyday is a different set of feelings that range from okay to unadulterated fear and like you I wonder what is next. Today I am going to go with... Lunch is next and I am going to enjoy it! It has taken me a full year to get to the point where I can joke about my situation and smile. Some days are better than others but I have come to believe that each one is a gift. Don't get me wrong, I am confused too and want just one clue as to what I am supposed to be doing to preserve the health I have. I guess that is why we have a site like this to share our stories and fears... It is healthier than worrying alone! Be well.
  • macysinsite1
    macysinsite1,

    My story starts around the holidays of 2016..Thanksgiving actually. I thought I just had a bad cold. By Christmas I knew I had more then a cold but refused to go to the Dr. As days went on my breathing got so bad I though I was going to have a heart attack. I finally went to Urgent care and they treated me for pneumonia which I did not have. On New Years day, my feet swelled up and I could not breath, little did I know I was in heart failure. Lets get to know more about the macys insite website by logging in to it. Macys insite is the portal of the Macys workers . <a href="http://www.macysinsite.co/" rel="dofollow">macys-insite</a> My sister who is a NP told me to get to the hospital, and if I did not listen to her I may not be here today. 3 days in the hospital to be diagnosed with dilated Cardiomyopathy, and my world turned up side down. Its been 2 weeks for me and I am not even close to adjusting to this. My whole life stopped as I knew it and I am struggling with depression as well. I work FT because I was told you can not get disability for this and the stress of 40 hours and being so tired has me even more unable to try to come to terms with this disease. It did not help to read about the life expectancy either. How do you learn to adjust to this.....when you do not have a clue.?

  • Thumper2
    Thumper2,

    macyinsite1, I hope you are seeing an electrophysiologist for your condition.  Does it include atrial fibrillation?  (That's what mot of us on this website are familiar with.)  Try to see someone else in your health system, about getting disability for your problems.  Keep us posted!

    Thumper2 (Judy)

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