Oct 21
apuffdaddy
apuffdaddy , Posted on SUPPORT NETWORK Blog

My Left Thalamic Stroke W/severe Central Pain Syndrome

Life for me has had many ups and downs.  Mainly downs...  My dad had heart issues in his late 30's and died from a heart attack when I was 11 years old.  I was heading in the same direction with an unhealthy lifestyle.  I married at age 19.  We had 3 children.  My oldest son is 20 yrs old now. He had behavior issues when he was younger.  He was in a Boystown residential program for a year and released in May 2013.  He is doing well now and joined the US Air force.  My daughter is 16 and has always been my rock.  My youngest son is 14 and he was diagnosed with Legg Calves Perthes Disease at age 3 then had a chronic pare-anal abscess at age 4 until he was 9 when he finally was diagnosed with Crohn's disease after a colostomy for 2.5 years and 22 surgical procedures.  He is now doing better with a Remicade infusion every 8 weeks.  My wife was chronically ill for 5 years and was diagnosed with Addison's Disease a year before she past away in May of 2013.  My mom also had heart and respiratory issues and past away in November of 2013.  So life was a little depressing for a long time.   I was over weight until my wife past away.  I became motivated to make some healthy changes for my kids and myself.  I panicked with the thought of my children becoming orphans.  I started exercising 5-7 days a week and lost 50 lbs.  I was starting to feel great about the direction my life was going.  May 9, 2016 is the day I had my stroke.  I was at work and started to feel numbness and tingling on my right side. I sat down then I couldn't keep my balance to stand up.  Ambulance came and took me to a hospital without a neurologist on staff then was transported to a second hospital.  I added this part because it was frustrating.   They did a bunch of tests then handed me a book on strokes. They didn't seem to act like it was a  big deal and/or could explain what caused my stroke.   They thought I was super healthy and I was released from the hospital the next day.  I had some discomfort but I could walk and talk. I stayed home for a week to rest then went back to work.   Immediately I started to feel worse.  I could barely walk and a co-worker drove me home.  I tried driving to my primary Doctor and could not focus and drove over the curb a couple times.  They thought I had a second stroke.  I went to a different hospital and stayed a week.   I couldn't walk without a walker and had a hard time talking.  I learned that stress and emotions make my symptoms worse.  Before I left the hospital I was walking laps around the floor.  Cognitively my doctor didn't know if I could return to work. I went back to work a month after the hospital.  It was a huge struggle.... I started physical, occupational, and speech therapy twice a week for 3 months until my insurance ran out.  I transitioned back to my gym but taking it easy and only for 30 minutes.  I was exhausted and I slept a lot.  I tried acupuncture.  I started doing yoga 2-3 times a week.  I continue to progress and I am now working out 8-9 times/week.   2-3 days yoga, 4 days weight training, 2 days cardio,  1 day of rest,   Cognitively is rough at times. I have some mobile apps to exercise my brain.  I get tired quickly.  I take one nerve pain medicine for this central pain syndrome and I know the exact minute for my next dose.   I have gone off the med a couple times to see if I could handle it and it is hard to function without the pain med. Lyrica.   It is SO painful!!  From my neck,arm,torso and hip/thigh front to back all the way to my spine on the right side.  It feels like a TENS electrical nerve stimulation cranked to HIGH making my right side buckle in pain.  I would not wish this pain onto anyone.   I pray everyday this pain will fade and completely go away.  Reading stuff online has not been helpful.  However, I continue to press on with a positive attitude and I try to notice any little sign of progress to keep me motivated.  All of my life experiences have made me a stronger person.   I have overcome a lot and I am grateful for where I am at today.           
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