Apr 25
maceybry9
maceybry9 , Posted on SUPPORT NETWORK Blog

My Heart After Giving Birth

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Hi, my name is Macey, and I'm 20 years old with Postpartum Cardiomyopathy, all I'm really wanting to do right now is share my story with others who are possibly like me. Now you would think, "How would someone her age have such a terrible condition? And what is Postpartum Cardiomyopathy?" Well I'll tell you, it all started a year ago days after shortly returning from the hospital and giving birth to my beautiful baby boy, Elijah, at first, I didn't know what was going on with me, we had just gotten home, both perfectly clean bills of health, and the next thing I knew, I started coughing nonstop the entire day, I kept feeling like I was choking and had extreme trouble breathing, so I had my grandmother watch Elijah for me while I went to the hospital to get checked out, now my phobia of needles has a lot to do with how my condition worsened so please pay attention, I had gotten into the back and they had just taken blood with a pediactric needle at first, I was worried sick over my son and that caused me to start having a anxiety/panic attack, soon after the IV team came in with the bigger IV needles, I'm terrified of it, I was so scared to the point where I was kicking and screaming so badly they had at least 2 male nurses over 250+ lbs struggling to hold me down, after they put the IV in and told me my tests results, I had Sepsis and Pneumonia at the same time, Once I heard this I started worrying even more over my son, because they were talking about putting me under anesthetic, I began to have a heart attack, which unfortunately lead to my condition now, Postpartum Cardiomyopathy, this type of Cardiomyopathy is very rare and happens after giving birth or during pregnancy, however, mine was after giving birth. This type of Cardiomyopathy involves an Enlarged Heart and Congestive Heart Failure. When I woke up I was no longer in Huntsville, Alabama, but Birmingham, Alabama in UAB and in my opinion the best Cardiology/Intensive Care Unit in Alabama. I had apparently been put into a medical coma because of how delirious and in shock I was, When I had woken up I went straight into shock, I had a breathing tube down my throat, I had two IVs in each arm, and a third one in my left wrist with stitches in it, a IV with stitches in my neck, They had given me multiple blood transfusions and had to feed me through a IV, at this point I had calmed down while being in the ICU when they took the breathing tube out, the doctor came in almost immediately after he had been notified I woke up, or heard me attempting to scream and rip the tube out of my throat, so they had to strap me down. They told me about my condition and told me that I shouldn't have anymore children or it could possibly kill me and that I needed an ICD (Internal Defribullator) and a heart transplant, today, I now have my ICD in, and I am so proud of my scars. Today I'm much more stable than I was once and honestly, about to have another child! Now I know what you're thinking, "You're crazy! You might die!" I"m well aware, I was well on my way to dying before hand as it is, and I'm currently almost into month 4 of my pregnancy and both I and the baby are okay! I just,I feel so alone out here, I just wish I had someone to talk to that somewhat had the same condition I'm in... If you've read this, thank you for paying attention, I just wanted people to know my story, Never give up, There's always a light at the end of the tunnel. 

3 Comments
  • AHAASAKatie
    AHAASAKatie,

    Thank you for sharing your story with us! Best Katie

  • rmjoswick10
    rmjoswick10,

    Hi Macey

               My Name is Robin.I just got done reading your story. Im so happy to see you survived that terriable disease. How is your pregnancy going? Im kinda excited to follow your journey with this.Did you have heart trouble pryer to your pregnancy? Im 54 and was diagnosed with DCM from a virus a month ago. Im still confused and dont know much.The doctors dont tell me much.This support group has givin me alot of answers. Keep up the good attitude and good luck

    ..

  • JeffBoyce
    JeffBoyce,

    Hi Macey - I just read your story and am inspired by you. You have such strength - I am glad to hear you and baby are doing well. Keep us updated!

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