May 27
Shelvin42
Shelvin42 , Posted on SUPPORT NETWORK Blog

My Fight

My daughter Avery Marz, suffered an acute ischemic stroke on 8/23/2014 while moving into her college dorm at the age of 17.  Luckily I was there and knew what was happening.  She fell on the floor and was paralyzed on her left side, unable to speak clearly.  I had the roommate sit with her while I ran to the security desk for them to call 911.  Ambulance arrives, starts taking information and her symptoms go away, they suggest maybe we don't want to go to the hospital now?  I said oh we are going to the hospital, why would they even offer that?  Had I not been there what would my 17yr old have said?
Rushed to Lankenau because once they had her on the stretcher she was paralyzed again on left side.  Once at Lankenau Hosp the neurologist in the ER says to me "well either she is having a stroke or she is faking"!  So you know I let him have an ear full!  Then she comes back from MRI and they confirm, deep clot in right side of the back of her brain.  They explain to me what the up and down side of administering tPA.  I give permission to administer and hold my breath that its not a bleed.  By now my husband has arrived at the hospital and we just can't figure how this has happened. She is moved to ICU and the next afternoon she is transferred to Childrens Hospital of Philadelphia.  She is only 17 and they are better equipped to treat her.  After one week there and many tests to find out why, we still are not 100% sure.  They feel that her Lipid A was elevated and with hormone from her birth control, that is what caused the stroke.  She was transferred to inpatient rehab for two weeks and then discharged to outpatient rehab, which she followed for 10 months.  She was able to start college the Spring of 2015 while going to rehab locally.  While inpatient we discussed getting a tattoo which she had asked me for many times before and I always said no,  Her stroke made me realize I had to put things in my life in perspective.  I said yes, but make the tattoo meaningful to you and not some guys name or some silly picture you will regret.  She had the date of her stroke tattooed on the back of her left shoulder!  She said in her instagram picture of the tattoo, "People tell you not to get a tattoo because they are permanent, but this day will always remind me that life itself is temporary"!  How can I argue with that!  
My daughter will be starting her junior year in college in the fall and she had a full scholarship that day 8/23/2014 to play basketball on the Woman's Division I team there at Saint Joseph University in Philadelphia, PA!  They have honored her scholarship and she has worked endlessly to get back to where she was that day.  The season starts November 2016 and we are hoping and praying she is on that court in her uniform for which she worked so hard for!  
Reading all of your stories, I think we each gain something from each other and puts life in perspective with what each of us has lost, gained and shows the true strength that lies within each of us.  Best of luck to all of you in your lives and recovery!  Like Prince's song, We are trying to get through this thing called Life!
  • Bluestarmom
    Bluestarmom,
    Every time I read these stories-and think of my own-I know just how often God's grace is with us. I'm so sorry to hear about your daughter's stroke, but so proud of her for being so determined to come back from it. Her tattoo is a wonderful testimony to her common sense in knowing that she had an opportunity to tell others just how precious life is. Indeed it is. May she live happy and healthy days for a long time to come and that her days on the basketball court are many - and successful. Thoughts and prayers to you and your husband as her parents as well.
  • ckfowler
    ckfowler,
    Thanks for sharing your story. I was recently diagnosed with A-fib. I was prescribed a second high blood pressure medicine and a heart medication. Knocked me on my butt. I was so sick I couldn't get out of bed. I called the doctor , but she never returned my call so I quit taking both the medications. As of the present, my heart condition is going untreated. I do not know what to do or where to go. I'm in limbo right now because my primary care doctor is quitting and I do have a new primary care doctor, but I can't get in to see her until next month.
  • strokebroke
    strokebroke,
    thank you glad its positive
  • hereiam
    hereiam,
    I am sorry on what you and your family are going through, hang in there keep praying and believing that all will work out for His glory for you and your daughter. Stay blessed!
  • Bobcat
    Bobcat,
    The call for independence... "Consider The Journey In Blade of Grass... It Take Place Beneath the Surface... And the Road He Travel Upon Call the... Least Resistant!..." © Thanks for sharing!
  • connectcare
    connectcare,
    I am so glad your daughter and your family are doing better. I am always shocked to hear what doctors say. Mom, thank God YOU were there to advocate for your daughter. I wish you all continued healing.
  • carolonowens
    carolonowens,
    way to go Mom for being there for your daughter & knowing what's best for her. we have to protect our children, even if it means upsetting the professionals. they're our children from God. Prayers & good thoughts to the 3 of you. may you continue to enjoy your lives together. let the pride & Graces show thru. Carol
  • revpr
    revpr,
    i know this sounds like it is coming form an old man but nine years ago when i was 49 i suffered an acute ruptured brain ayneurism. i was getting out of bed on a sunday morning. i am reminded by the young lady and her ischemic stroke while moving into college becausei, too was unable to speak. the resulting stroke was also on my left side. i am considered to be the recipient of a miracle since the emergency room prognosis had me dead that night or left a vegatable for the rest of my life. i assure you i am neith of the walking dead nor am i a califlower. i have learned much. most of all is to question everything. even the question why deservers an answer.
  • Trish Peterson
    Trish Peterson,
    You were meant to be there! And the tatoo; I have never had one done and I have discouraged my children who are both young adults. I am rethinking that now.
  • Leslie
    Leslie,
    Hi, this is amazing what all of us have gone though, and yes we are all different. Yet there is no question that the Lord is in our hearts and angels all around us! Big Hug Leslie
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