Feb 8
Lscorpio2745
Lscorpio2745 , Posted on SUPPORT NETWORK Blog

Miracle Mabel

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My youngest twin daughter Mabel was born with a congenital heart defect coarctation of the aorta and had her first open heart surgery at 9 days old and spent 47 days in the NICU. After visiting with her cardiologist after her 1st Birthday, Mabel was diagnosed with her second congenital heart defect, subaortic membrane, and in October of 2015 she had her second open heart surgery to remove the membrane. After a couple of years passed, Mabel turned 4 and her heart and function were looking real good and her cardiologist wasn't going to see her for 9 months. Then a month and half after her last visit Mabel started experiencing pain under her left arm and after visits to both her pediatrician and cardiologist and numerous tests were performed it was determined her second defect was growing back and causing massive leakage. Right before Christmas, Mabel was transferred to another hospital to have emergency open heart performed to stop the leakage and remove the membrane again. In the process of being transferred and before the surgery she went into cardiac arrest twice. After reviving her the surgery was performed, the ROSS procedure, and Mabel was placed on an ECMO machine for 4 days while her heart rested. After overcoming the surgery and complications that arose during her recovery, Mabel was removed from the ECMO machine and  her breathing tube removed and placed on dialysis to help her kidneys recover from the damage they substained. Mabel spent the holidays recovering from all the obstacles she encountered and made a miraculous recovery. After spending 19 days in the PCCU at the hospital Mabel was transferred to a rehabilitation hospital for 10 days. After 29 days in three different hospitals during the holidays Mabel finally came home and we were able to celebrate Christmas with her twin sister and family. What was a planned morning of having tests run to find the cause of her pain turned into a nightmare of whether Mabel was going to survive before Christmas.  Mabel has numerous follow up appointments and PT to do but she is pushing thru all of it with determination. Mabel is a miracle and a fighter. Mabel is our hero! As a mother you never think you would see you child in as much pain as I saw in Mabel and it truly was any wonder how she kept playing with her sister and being active. I never imagined I would see the things I saw with my eyes and it broke my heart witnessing my daughter struggle. I am truly grateful to every single surgeon, doctor, nurse and everyone in between who cared for my daughter. She would not be here today if it wasn't for their professionalism. 

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