Maddison's StoryHello Everyone!
I am Rakita Ames, mother of a daughter born with a congenital heart defect. At just 20 weeks of pregnancy my daughter was diagnosed with a very rare heart defect, for this being my first child I was devestated. My husband and I were miss diagnosed at first, the doctor told us that our baby would have a slim chance of survival and that we needed to have several tests ran on our unborn child. They said she would have developmental problems and possible retardation. I refused to belive this news and refused any and all tests. I trusted God and I knew that our baby would be ok. After more scans and ultrasounds, we were told that our baby has Truncus Arteriosus click here to learn more. Needless to say our miracle baby was born January 28th 2016 at 8:18pm weighing 7lbs 12.4oz and had open heart surgery at just 4 days old on February 1st 2016. The scariest and emotional day of my life! She was the talk of the PICU, she snatched her own feeding tube and breathing tube out and as a result the doctors decided to leave the breathing tube out because she was breathing great on her own (miracle right). After just 2 weeks in hospital to recover we brought our miracle baby home! Maddison Marie Ames is now 7 months and will be 8 months tomorrow, she is so big, alert, smart and amazing!