Jun 11
Skittles16
Skittles16 , Posted on SUPPORT NETWORK Blog

Living with an aortic aneurysm

First off I am 59 years old and just found out I have a congenital heart defect (bicuspid valve) which has caused an aortic aneurysm to develop over my lifespan. Thankfully my Dr. didn't like the sound of my loud heart murmur and referred me for tests. So now I'm taking beta blockers to slow me down.The past several years I have been extremely fatigued which I understand fits for a symptom with aortic valve problems. I work with special needs children as a therapist for a living. My worst fear is not being able to work with children anymore. I am seeing a vascular surgeon next week for a consultation. My last echo cardiogram which was 2 weeks ago showed my aneurysm is significant, more than 5 centimeters. Looks like open heart surgery is fast approaching. Yikes%uD83D%uDE32
  • jlholmes99
    jlholmes99,
    Me too.now, 4years post surgery, 5cm an. 5way CABG, ascending artery ireplacement. ,valve replacement. I can do anything I want. shortness of breath gone. work out at a gym 3 days a week. it takes some effort. my heart was over developed now H R is 47 tp 80bpm
  • arnieandcaroline1
    arnieandcaroline1,
    My Aortic Aneurysm stop me from two many benzos plus shortness of breathe also I can't get no operaton but if someone has heard of someone who can email me at arnieandcaroline13@cableone.net Thanks.
  • wh
    wh,
    My Dad died of an aorta aneurysm at the age of 45 in 1964. Nobody knew he had it. I just had a brain aneurysm burst and was lucky enough to be hospitalized. I suffered a subarchnoid stroke and have been home a few months now after being in a coma and having to relearn many everyday things. I am feeling pretty well, but don't have the stamina I used to have. I am lucky to be alive!
  • connectcare
    connectcare,
    Make sure you have reliable help lined up upon your arrival home. As much as we want to leave the God-forsaken hospital, it is scary to be home alone afterwards. I had CABG-3 and severe complications. I hope only smooth sailing for YOU.
  • carolonowens
    carolonowens,
    prayers & good thoughts coming your way for a successful, speedy recovery so you can enjoy what you love doing. Carol
  • AHA Ambassador Mark
    AHA Ambassador Mark,
    Your symptoms and the results from your recent echo-cardiogram suggest that it is indeed wise for you to be consulting with your cardiologist and a vascular surgeon for treatment plans. I too had a bicuspid aortic valve that needed to be replaced when I reached 60 years of age. The aneurysm that has developed is a strong indicator for attention and treatment. Please follow your doctors' recommendations and know that there are many of us here on this site who have been through what you are experiencing and have gone through treatment and recovery to resume our active and productive lives. You have a very treatable condition so find the best care possible, follow all instructions carefully and the chances are very good that you will be able to resume the work and life that you cherish. All the best to you as you begin your treatment journey. MarkR
  • jthomas0624
    jthomas0624,
    I wish you the best of luck and many blessings for what you are going through keep the faith and it will work out in you favor
  • BevPohlit
    BevPohlit,
    I know it sounds scary, and it is. Wishing you the best, and positive thinking brings positive outcomes. I'll keep you in my prayers. ❤️❤️❤️
  • Chris M
    Chris M,
    Hi, I'm glad they found this for you. My son was also born with a bicuspid aortic valve. He developed dilatation of his ascending aorta. He was only nine years old when his aorta measured 4.2cm. and required surgery. He had valve sparing surgery where he received a synthetic graft of his aorta and bovine pericardium to make his valve function better. It was a better option because of his age and not having to be on anticoagulants. We were told that he would need a valve replacement someday. He is 22 now and is doing well. So far, so good! Make sure your surgeon has done this surgery before. We had a very good surgeon, whom we trusted very much. Good luck to you. I'll keep you in my prayers.
  • Skittles16
    Skittles16,
    Thanks to all for the prayers and good wishes. My surgeon specializes in adult aneurysms and valve repair and replacements. I am keeping the faith
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