Feb 10
aldominguez
aldominguez , Posted on SUPPORT NETWORK Blog

HLHS and Transplant

Story image

I was born with Hypo-plastic Left Heart Syndrome (HLHS), a congenital heart defect that affects the left side of the heart. After multiple tests and procedures, my heart was no longer able to adequately perform the functions needed to sustain life; my only option for survival was heart transplantation. 25 years ago, at the age of 8 months, I received my heart transplant. In the years since, I have been monitored closely by my transplant team, undergoing tests and having doctors visits each year. However, because of my heart transplant I was able to grow up and experience life! I am a graduate of the University of Iowa and the University of Southern California and now have a career in medical social work. The knowledge and understanding I have gained throughout my life from heart disease change agents, like the American Heart Association, is one of the reasons I am alive today and will be forever grateful. I hope my story will inspire others to spread awareness on the importance of congenital heart disease and other forms of heart disease.

4 Comments
  • JoGraham
    JoGraham,

    25 years!!!  Wow!  As a mom of a 13 yr old, HLHS and 7 years post transplant; it give me hope.  Thank you for sharing!

  • JoGraham
    JoGraham,

    25 years!!!  Wow!  As a mom of a 13 yr old, HLHS and 7 years post transplant; it give me hope.  Thank you for sharing!

  • marysirianni
    marysirianni,

    So inspiring! 

  • HLHSmomIL
    HLHSmomIL,

    Praise God :o)  My son, 23. HLHS, heart is giving out. Cardio team says heart transplant in necessary soon. Anyother adutls out there facing the same? Looking for info. Thank you - Illinois HLHS Mom

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