May 2
Tonie50
Tonie50 , Posted on SUPPORT NETWORK Blog

Everything that led up to my Advanced Heart Failure

Hello, my name is Antoinette. I am 50 years old. My heart problems began in 2005. when I was 39 years old. I've had Severe Hypertension since I was 27. I went to a regular doctor's appointment. The doctor listened to my heart and heard something that wasn't right. He sent me for an EKG and a ECG. Once he got my results back, he said that he wanted to send me to see a Cardiologist. My doctor told me that my heart rhythm was not right. So, when I go to see the Cardiologist, he has tests done on me and he said that my heart beats fasts and slows down. He said that I would need a Heart Ablation to correct the problem. So, I had a Catherized Heart Ablation. I thought my heart troubles were over, not by a long shot. In 2008, I had a mild heart attack. Thank God, I knew what the warning signs were so I went to the ER just in time. Then, on Labor Day weekend 2010 I could not breath. I had been having breathing problems that lead up to me having problems that weekend. I went to the ER on a Sunday night and was released from the hospital on Friday at the end of that week. Well, they kept me because they said that I had Mitrovalve Regurgitation, blood and fluid was coming back up in my lungs. This was the beginning of everything that led to me having Heart Surgery. The cardiologist had scheduled me for a Stress Test, the day of the nurse came and told myself and the nurse that was doing my paperwork that the Cardiologist was coming to talk to me and I will not be doing the stress test. I knew right then, something was seriously wrong. He said that I needed surgery soon. I had to go get a dental clearance and a lot of tests done. I also had to go see the Heart Surgeon who was doing my surgery. His name is Louis Louis 4Th. he saved my life. I had my heart valve replaced with a Mechanical Heart Valve, and I have to take blood thinners for the rest of my life. I had recovered very well and was only in the hospital for 7 days. I had Cardiac Rehab after that. Now, the heart surgery was on May 3,2011. Again, I was feeling so much better after healing and recovering from the surgery. Now, in 2014, I started getting short of breath as to where it was affecting my walking. My PCP sent me to see a Cardiologist who is a colleague of his. The cardiologist had me to go to the University of Cincinnati's MRI technician. I was not able to complete the full test because I discovered that I was claustrophobic, but it was enough for the doctor to make a prognosis. When I went back to see the cardiologist, he told me that I had Advanced Heart Failure. He referred me to the Advanced heart Failure and Transplant clinic, in which I got to see the Heart Surgeon who did my valve replacement. Dr Louis had told me I was going to have to have another surgery,but he did not know which kind yet. July 2015, I had a defibrillator implanted in order to keep me alive. This has been a long hard road for me. Right now I am very short of breath and I know that I am on my way to being hospitalized.
4 Comments
  • LesterS
    LesterS,
    You will get through this--by the Grace/Mercy/Love of the Almighty God. As you continue to place your trust in the Lord, He pulls you through. Christ sustains us/is with us /and fights for us. I truly know this, being a caregiver for my spouse who had a stroke/paralysis/ aphasia/ other illnesses as well. In the midst of it all, Jesus knees my mind steadfas on Him/His Word! Remember that the Lord loves you very much and cares deeply about you and whatever concerns you. As you call upon Him. He manifests Himself mightily. I and my prayer partners will pray/continue to lift you up in prayerm. In the Lovely Name of Jesus! tains us
  • wold8007
    wold8007,
    Hi Antoinette, I can totally relate to your situation. I was born with mitral valve prolapse. I began to,have problems in 2008. It started with afib. I had no health insurance. By 2012 the afib was no,longer controlled by meds. Also my echo's were,showing regurgitation. On April 23 I had open heart surgery. A mechanical valve was put in and the Maze procedure was done to stop the afib. The maze didn't work and they could not my INR where,they wanted. It turned into a 21 day stay. In August was the first of 3 ablutions. One for afib and the next 2 for PVC's. In 2014 I went into congestive heart failure. My EF was at 25. So I had a defibulator/pacemaker put in. Less than a year later it malfunctioned so back to surgery. My EP Doctor put it under the muscle so the healing process was slow and painful. I am 56 years old. The last two ablations for PVC's didn't work. I get exhausted quite easily. In the process of accepting I need a handicap tag and a walker. I fight depression. The last 4'years have been over whelming, SCAREY and Hopeful. I have not been able to go more than 3 weeks for lab visits for my INR. I am on SSD so I do have insurance now. Hoping to get a home monitor for my INR. I do pray you have family support and others in your Amen corner. I couldn't go through this without mine. I'll be praying for you. Christine Wold
  • BevPohlit
    BevPohlit,
    I'm humbled by your strength through your journey. You are a true survivor! Thank you for your story.
  • janbeard1960
    janbeard1960,
    Antionette, Prayers for you. Jan
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