Jul 8
TimV
TimV , Posted on SUPPORT NETWORK Blog

Cardiomyopathy & A-fib, a 1,2 gut punch

I currently am 48 years old, nine years ago I had bronchitus followed by I cough I could not shake.  Went to my PCP and played referral roullette; ear, nose and throat?  Nope my tonsils and adnemoids were intact and uninflamed. Pulmonologist? Chest CT and biopsy, nothing conclusive.  Out of desperation I went to see my Dad's doc, with n 10 minutes, a diagnosis via echocardiograph congestive heart failure brought on by idiopathic cardiomyopathy.  Ejection fraction 10-15%, resting heart rate 132 bpm.  
Me with 3 little kids, under 40 and hearing words like heart transplant and HEART FAILURE.  Put on strict rest, microscopic sodium intake (1200mg) all day and a cocktail of drugs that left me curled up in the fetal position for an hour fighting off the dizzies twice a day.  TO me the wrst part was my handicap tag that I transferred from car to car.  Slowly got better, ef up to 45-50%, walking doing more. Yeah!

2012, feeling a little weird, go see the doc, he listens to my heart.  His exct words were "uh-oh", A-fib.  Cardioverted twice, no dice.  Sent to "the Electrician" a specialist cardiologist.  3 days in the hospital with Tikosyn followed by cardioversion and release.  Yeah!  It took!  My 81 year old PCP retired, giving me an excellent replacemtn PCP.   "the Electrician" moved to Chicago.

2015, feeling weird with persisent cough. 2 weeks in, my replacement PCP leaves for concierge medicine. Run around trying to find doctors who see there's a dangerous pattern here, eventually find another electrician, tries cardioversion.  Takes for 2 weeks, then it's back, cardioverted again, no fix. Cardiologist goes radio silent.Track down cardiologist's assistant, told it might be a plumbing issue with my heart so set up consultation for echo, strss test, Ct angiography.  All done, A-fib and heart failure, hear the transplant word again. EF down to 20-25%,  Hybrid ablation discussed, now waiting 4 weeks until I can actually get the procedure.

I am well and truly freaked out
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