Macdancin
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Macdancin, January 25,  2019  5:45pm EST
Dan 2019.jpg.

Where to turn???

I've just gotten out of the hospital for my 5th TIA in 8 years. I actually had one 11 days ago that I ignored (it went away after 2 hours). but I had one 2 days ago that scared me, in that, I REALLY could't remember things when they were told to me numerous times. I was totally surprised when they told me it was January, 2019. I truly thought they were joking. They let me out the same day after all the usual tests...which were, of course, negative. I'm still kind of foggy.

When I had 2 TIA's this past August, the neurologist, who obviously didn't read my history (past or present) suggested it was just migraines!!! I had to point out that both my mother & father had multiple TIA's and strokes, that my dad died of a stroke and that my younger brother was presently in the hospital with a slow bleeder stroke. I almost called him a quack!

This neurologist suggested it might be due to my multiple neck surgeries with hardware and also not a TIA. I had to also educate him on my family history. He pretty much shrugged shoulders, told me to take my meds and 'good luck.'

I've had 29 surgeries, mostly orthopaedic, and am diabetic. I've also had different symptoms during the events. The ones 6 months ago, my right leg went numb as well as the head swooning. I also had blurred vision and speech problems for short periods of time. This time was just the memory loss...

I don't know who or where to turn to? My younger brother, who had the stroke, joked that "I guess they'll find out during the autopsy," Pardon our sick hunor...

2 Replies
  • AHAASAKatie
    AHAASAKatie, January 29,  2019  9:22am EST

    Welcome to the Support Network and thank you for sharing. You have definitely been through an ordeal and we are glad to support you! Please let me know what I can do to help you through this time. Best Katie 

  • Buggas311
    Buggas311, January 29,  2019  10:01am EST

    I'm sorry to hear about your experience with your neurologist. The best advise I can give you is to run from his practice and find a new Neurologist. When my husband had his stroke and was laying in the hospital bed with a horrible headache, the neurologist told us that his brain was swelling. We asked what could be done and she said pray for good luck!! Imagine that. Well we immediately did our research and found that there was more options than praying for good luck. We had him transferred to another hospital and they did a lot more than pray for good luck. He survived his stroke, however he would not have survived if he would not have had someone to advocate for him.

    Not all docs are equal. I wish you well and hope that you find a Doctor that listens.

    Best

    Lucy

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