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inbody, October 5,  2019  10:25am EST

My story

I'm not really why I'm posting this other than I'm not sure where else to do it. I usually don't feel comfortable sharing my story for fear of seeming "attention-seeking".

When I was 22 I started having symptoms of Parkinson's disease. I was diagnosed with PD when I was 30. When I was 34 I suffered a TIA that has left me disabled, essentially lowering my right side strength and jumbling up my communications center. I'm now 36, approved for full disability and wondering what does the next 30 years look like? I'm mostly mobile and able to care for myself, I'm just unreliable and my energy is completely different day to day. Most who meet me have no idea I'm not well.

Thank you for reading. Again, I'm not sure what I'm looking for. Just trying to accept where I am.

2 Replies
  • AHAASAKatie
    AHAASAKatie, October 7,  2019  11:00am EST

    Thank you so much for sharing your story with us! I know it can be hard to get started talking. However, it is wonderful that you are here and talking to us now. Best Katie

  • Spooky75
    Spooky75, October 7,  2019  4:49pm EST

    Thanks for joining us - and for being brave enough to share what you're going through. Sharing your story doesn't make you an attention-seeker. Rather, I think it gives you the opportunity to not only help others, but to also meet people who have gone through similar things. I've found that what's really helped me in the year since my stroke is telling people about it - particularly people in places like these, because these are people who can relate. 

    I was particularly struck by this in your post: "Most who meet me have no idea I'm not well." I totally understand that. I walk a lot slower than I used to, and stairs remain my nemesis. When I let people walk ahead of me, I sometimes mention that I had a stroke a year ago. They're always shocked. Always. It's weird, because that stroke impacts me every single day, and most people don't know it. 

    Please reach out to us here whenever you need to. We're all here for you!



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