Mdulina
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Mdulina, September 25,  2019  5:17pm EST

Living with TIA

On September 3, 2019 I was transported from one hospital by ambulance to another after the diagnosis was a dissected cartoid artery with 90% blockage.  Since that time I have been ordered not to work or drive because I suffered nerve damage to my right side and have lost some function.  Since then other than this website I haven't found any local support groups other than New Haven CT which is not quite close to my home.  Any advice in coping with my condition?

3 Replies
  • AHAASAKatie
    AHAASAKatie, September 26,  2019  10:56am EST

    Good morning, I am so sorry that you are having to manage this. I can share the information we have on life after stroke with you.  I also look forward to reading what our members have to share for you as well. Best Katie

  • JKViggiano
    JKViggiano, September 26,  2019  11:54am EST

    I am sorry to read of your situation. My husband survived a massive stroke due to a spontaneous bilateral carotid artery dissection.  Horrible. We also had a hard time finding support groups. We ended up looking for brain injury support groups around town. That group included a wide age range, injury sources, and outcomes. 

    Have you called local hospitals to find support groups? I assume you are receiving therapy for your right side--do your therapists have any support group suggestions?  If none are found, are you up for starting one? I remember how isolated we were those first years and I kept thinking we couldn't be the only ones.  We weren't, we just couldn't find anyone.

    We eventually found a support group run by a physical therapist.  That was the best because she was very encouraging and brought in guest speakers. I hope you find a supportive group that meets your needs. Good luck.

  • TEAMGUZMAN
    TEAMGUZMAN, September 26,  2019  11:57am EST

    Good afternoon! My name is Toni, and I am also an ischemic stroke survivor.  I am also a volunteer here on the Support Network.  Welcome to our family! Here you can gain knowledge and advice from other people who are going through similar situations and experiences. We may not have all the answers, but we can certainly direct you to the right source  when needed. I have made many people here who offer advice, or just an ear to listen, which to me is most important. It's difficult sometimes to speak with someone about our stroke. It's not that they don't care, I think it's more that they do not understand. This website is also helpful to caregivers. I wish the best, and please keep us posted on your recovery. You are not alone my friend.

     

    Blessings,  Toni

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