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Where do I go from here?
My name is Lacy and I had a stroke April 5, 2019. Im 26 years old and before the stroke, I was working with kids who have autism and related disorders. I love my life and my career! My story is kind of a hard one to digest. The night that it happened, I was with a roommate. She subleased from my friend so I didn’t know her. I started feeling like some was wrong and all the feeling in my right side was gone. I collapsed and I tried getting her to call for help throughout the night and next morning, she ignored me. I tried looking for my phone but she hid it from me. I wound up going out on the front doorstep and asking a neighbor to call. By the time the paramedics and got into surgery, I had a stroke for 8 hours. It’s been 4 months and I’m doing better but I don’t know what to do as far as where I’m supposed be in this stage. Just looking for some advice!
JOAQUIN, August 22, 2019 9:05pm EST
Every stroke survivors post-event condition is different. I would suggest that you contact you primary care physician and ask him/her what is the next step for you. At the ER, did the hospital do the blood work up, CT scan? Did you need to see a cardiologist or neurologist? If the answer is NO to the questions, I'd suggest that you see a physician soon and relay your details to him/her. Next, buy a copy of Jill Bolte taylor's autobiographical book, on the hemmerogiac stroke which she experienced in 1995. Great book! You may also seek out some therapy, if you have any sort of difficulty with speech, or motor skills.You can also do a Google Search for a "stroke support group" in your area. Just add your zip code to the above search. You do need to seek some sort of after-the-event care. Lastly, learn as much as you possibly can about the type of stroke you experienced. Please keep us posted on your progress!
Mchynoweth, August 22, 2019 9:53pm EST
Hello! I’m 31 and had my stroke a year and a half ago. My best advice is to go slow and don’t rush into anything. It’s hard having a stroke so young, I had a hard time realizing I wasn’t going to be able to just hop back into my life as it was before the stroke.Also I would say put your energy into doing what is best for yourself so you can get back into helping others. My husband always tells me to be selfish, which is very difficult! I always want to put others needs before myself, but I don’t think this is helpful when you are in a recovery stage. But on that note I found doing volunteer work for a few hours a day helped me get back to work when I was ready. Best wishes in your recovery process!
Matthew1, August 22, 2019 9:58pm EST
Hi lacy, I’m so glad you found us but very sorry about your terrible experience. As a stroke survivor myself, I know the courage it takes to tell your story and ask for advice. There is no “supposed to be” at a certain place after stroke. Every stroke is different. Every person is different. Are you in therapy for physical issues? And I do recommend some type of emotional counseling. Please provide some more detail on your progress if you’re comfortable doing so. In general, taking one day at a time is very important. Small milestones are actually tremendous! That means you’re moving forward. Please write back. YOU CAN DO THIS!!!!!
Believe1, August 23, 2019 9:52am EST
Hi all! Thank you so much for your responses! I’m going through therapy now and I’m seeing doctors regularly, including the social worker. My mom is taking care of me and I just wanted some general ideas for where I should go from here. You replies have been so helpful! Is there any advice you can give me to help my mom? I know one of you have a husband but how did your family take it?
Mchynoweth, August 23, 2019 4:36pm EST
I was fortunate to have a lot of family support, my in laws gave me rides and my husbands work was incredible flexible and understanding, so he was able to be there for me a lot. One thing I have noticed about my husband is all the wear and tear it has taken on him and how stressed out he was. He had to sacrifice a lot of time for me, which I will forever be grateful for. So a few times I stayed with my in laws so he could go camping with friends, or on motorcycle rides. It was hard because I had developed some separation anxiety but I knew it was important for him! So I think it’s good for care givers to also make sure they are taking time to take care of them selves.
queenbeem, September 13, 2019 10:24am EST
So sorry that you had to experience a stroke at such a young age. I am a caregiver for my husband, so I can understand what happened to you. Are you seeing a neurologist? If you are not you need to see one, they can guide you and let you know what to expect and what you can do to help you from not getting another episode. Are you taking any kind of medication? Hopefully you are. Your Neurologist would be the best person to speak to. I wish you the best and my prayers are with you.
Kanndiaz1, September 27, 2019 1:40am EST
Hi lacy, i don't know where you are in your recovery so all I can do is tell you what I believe helped me the most. I had an massive ischemic stroke at 40. I was healthy, physically fit, No red flags like high BP etc. I was in mexico and by the time I was had a life flight to a US hospital it had been over 12 hours. I spent the next few months in TBI hospital. I was paralyzed completely on the left side. Recovery is a long hard road but things will get better. Recovery doesnt have a time limit. I really think that NMES helped me a lot with regaining the use of my left arm and leg. I also think that brain training games are helpful with encouraginf neuroplasticity. There are quite a lot of apps out for that. Surviving a stroke can be very discouraging as most people can not fully understand the vast range of problems survivors face. The brain fog, fatigue, paralysis, loss of normalcy, depression and CPSPS can be quite overwhelming. I hope that you dont get discouraged or ever give up recovering.
Believe1, October 3, 2019 11:47pm EST
Hi everyone! Sorry it took so long to respond. Im seeing everyone (ie the neuropsychologist, hematologists, OT etc). Ive narrowed down my meds to about 5 pills a day. Thank y’all for all the help!