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skaupa1128, July 7,  2020  7:13am EST

Vision dark

My husband had his stroke December 27th 2019. They don't know exactly what caused it. To look at him you would never know he had a stroke. But his vision  and cognition were affected. He has visual field cuts that impaor his vision as well as his vision keeps getting darker. His doctors can't figure out what is causing his vision to darken and they dont know if he will go blind or not.  I feel like they have given up on him on finding the cause of caring if he goes blind. I dont know how to help him stay positive . I try to be positive all the time amd then I go hide on the bedroom amd cry for him.  Before stroke he was a master mechanic he knew how to do anything. Today sometimes he has a hard time finding the fridge.

I missed the signs of a stroke and I didn't get him to the doctor in time for reversal. He had a headache! A headache and his eyes in healthcare how did I miss it?


4 Replies
  • Matthew1
    Matthew1, July 8,  2020  8:39am EST

    Very sorry you are both suffering. Stroke can be life changing for everyone. As a stroke survivor who also suffered permanent damage to my vision, I would definitely get him to other experts for 2nd and 3rd opinions. They may pick up on something the other doctors did not. I used a Neuroopthalmologist.

    I can’t stress this enough. Numerous opinions are crucial !! 

    Please be kind to yourself. Hindsight is always clear but you still have a chance to help him! Being emotionally supportive and patient is crucial 

    by celebrating small steps forward and working ******* a regular basis, his mood might improve. Staying as active as possible (even a short walk) and stimulating his brain by reading or doing puzzles can also have a positive effect .

    BE AGRESSIVE In finding attentive doctors and therapists ! Also, consider a physchologist if his/your mood doesn’t improve. 

    All the best. 

  • AHAASAKatie
    AHAASAKatie, July 8,  2020  9:26am EST

    I am so sorry that this happened to both of you. I am in sync with Matthew1, get more than one opinion on this. Another consideration is to see a doctor specializing in eyesight post-stroke to help determine what is causing his decrease in eyesight. 

    In regards to your being in healthcare and missing the signs, please give yourself some grace. People get headaches all the time, and that and hurting eyes, it's reasonable to think he just had a headache and maybe allergies. Plus, the stroke has happened now. You can't change it and even if you had caught it and he had treatment, there are never guarantees with patient care, there are only probabilities. 

    Please know that we are here with you both, to help and support. 

    Best Katie

  • JKViggiano
    JKViggiano, July 8,  2020  11:45am EST

    I fully support what Katie and Matthew said!  Keep looking for specialists who will do the digging for potential solutions. When my husband had his stroke, I was extremely frustrated by the stock answer, "Every stroke is different." Even though it is true, it also seemed like an excuse to not pursue answers. Keep looking!

  • TomBroussard
    TomBroussard, July 9,  2020  5:10pm EST

    I am so, so sorry for this to happen!  The body and the brain can do a lot without even knowing what the answers might be...such keep pushing forward for sure. He is a master! He must be good at what he does! He didn't get there by accident...and with motivation and practice is almost the only way most people can move forward...then and now. Please let us know how you both are doing...we are thinking about you and your family...Tom B

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