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New to the group
My name is Lee, and I suffered a stroke last Thursday, 4-8-21. I was substitute teaching for a PE class, when the entire left side of my body went numb right after lunch. After I was rushed by ambulance to the ER, and after the CT scan and MRI, it was discovered that I had suffered a mild Thalamic stroke. I was in the Hospital for 3 days, mainly because my BP would not come down (it hovered around 223/125, and at times even higher), and I had one of the worst migraines of my life, combined with extreme nausea and vomiting, which meant I couldn't keep anything down, including water and medication. It was the worst experience of my entire life!! Now, I am home. My BP is still a little high (!57/89) but I am on new BP meds, along with the rest of the pharmacy that I suspect all of us are having to take. The remaining symptoms that I have, are mostly motor and balance related, although I still have the muscle tightness and numbness on the left side, it sometimes takes a monumental effort to move, or get my limbs to do what they are supposed to do (typing this has been a joy!!), etc. Oh, and I am sooooooooo exhausted all the time now. Like having a bad case of the flu, and being drugged up on all the cold and flu meds you could get your hands on kind of exhausted.
Anyway, that's my story. I just wanted to introduce myself.
AHAModerator, April 14, 2021 8:44am EST
Good morning Lee,
You have been through a great deal and I am really glad you've chosen to reach out to the Support Network for advice. I hope as you continue to interact with others on the Support Network, you are able to foster a sense of community and solidarity. I'd like to share some resources with you on Life After Stroke and on the Effects of Stroke.
Please know that you are not alone and that we are here to help you through this time. Keep us updated on how you are feeling as you recover.
Francisco601, April 14, 2021 6:03pm EST
Good afternoon everyone, my name is Jose Francisco Peña, I am a stroke Survivor of an Ischemic Cerebellar Stroke (Right Cerebellum side affected). My stroke happened this past Labor Day, right after midnight on September 8th, 2020 at 4:00 AM (Approx). It has been a nightmare, this past 7 months I spend about 2 months, 3 weeks in ICU, and the rest of the time in a recovery facility down here in South Texas on the McAllen, Medical Center 6th floor. I don't even know how to start, I feel awkward, lost, maybe depressed, but well, here we are. I respect a lot Lee you sharing your story with all of us, it takes a lot of courage to share this type of situation and stories with the rest of the world. Let me give you a brief description of how everything started. On Friday, August 28th, 2020, around 8:15 PM, I was sleeping, on a Friday, been 39 years old, feeling exhausted and really, really tired, it was not normal for me, I was supposed to be BBQ-ing and drinking in my back yard instead. But well, I woke up around 11:00 PM thinking I was dreaming, I felt the whole room spinning around me like crazy, non-stop (vertigo). I went back to lay down on the bed thinking it was a dream (a nightmare I would say), I had a lot of vertigo and the spinning never stopped, I felt nauseous and throwing up, but I had to stand up and go to the restroom (toilet) to do this, I couldn't, as soon as I stand up from the bed and tried to walk, the spinning was going faster and I could not manage my legs to walk, I had to go crawling to the toilet and threw-up. At that time, I thought it was a case of food poisoning or something with my stomach, to make the story short, as I could, I grabbed my phone and dialed my wife to ask her to deploy an ambulance to the house, she was not at the house, she was visiting my in-laws with my three children. The ambulance arrived, and they checked all my vitals, they send me to the nearest hospital, they said it was a vertigo attack or dehydration. The Emergency Doctors in charge checked for drugs, vitals, COVID-19 symptoms, etc. They released me from the ER Room thinking it was an episode of vertigo, but what they did not check or knew, is that it was the first episode of a brain stroke, a TIA (transient ischemic attack). On Saturday, August 29th, around 11:00 AM, I asked my wife to take me back to the Emergency Room, I could not walk, I did not have any balance or strength moving my legs, vertigo symptoms were still there, vomiting, nausea, etc. During this second visit to the ER Room, the Doctors in charge for that morning shift, requested a CT Scan of my head and brain, unfortunately, they concluded that everything looked good, and they insisted on the vertigo diagnosis and prescribed me some medications over the counter for vertigo and allergies. After 9 days the second episode hit me on Tuesday, September 8th around 4:00 AM, this was the worst feeling ever, I felt someone was drilling my right side of the brain with an electric drill using a sharped concrete drill bit, I felt this sensation until I lost 4 switches/breakers of my body, 1.-Vision, 2.- Speech, 3.- Body Strenght, and 4.- Balance and Coordination of my limbs. Thank GOD my Wife was there, and she called the ambulance right away, my second chronic infarct (Brain Stroke) was happening. I hate strokes, I hate them.......It has been a difficult 7 months of recovering, coping, struggling financially, among other nightmares. I can only tell you that my faith in GOD and my positive attitude will take me further on a fast recovery adventure. I will continue with my story on a second post, I get to go right now.....GOD bless you Lee.
Jose Francisco Peña
axnr911, April 14, 2021 8:30pm EST
Lee , I'm sorry you had to go through all that. I had a stroke 2 1/2 years ago and have been working on recovery since. I'm doing quite well now, but still get tired easily. Being exhausted is quite a typical feeling after a stroke, as well as that drugged up bad case of flu feeling. I think it's partly because your brain is working overtime to make you funcion while it's busy healing and rewiring itself over damaged areas. The only way it can tell us it "hurts" is by registering "tired". Rest as much as you can and listen to your body, but keep yourself active and physical as well. It's only by "doing" that the brain learns to rewire, like learning to play a musical instrument or a new language. Drink lots of water, too. The brain needs a lot but can't say "thirsty". Be patient with youself. Though it's slow, you'll get better bit by bit every day. I'll remember you in my prayers tonight. Love, Jeanne