donna1929
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donna1929, December 28,  2018  3:05pm EST

I had a stroke at 62 years old!!

I always followed a healthy lifestyle - no smoking, followed a low-fat diet, exercised regularly and yet my basilar artery was clogged.  Turns out I have a hole in my heart.  They are checking for a-fib now by using a loop recorder. My doctor feels it is not a problem with a-fib but has to check first.  I feel isolated and alone, happy to join the group.  Although it has only been 3 months, I know how it feels to be a prisoner in my own body.  I have not worked since last January, as I decided to stay home to care for my husband who has bladder cancer.   I am bored and frustrated and desperately want to go on with my life and put this behind me.  

I did not mention that I was building a health coaching practice when this happened.  It was my dream to help others have a better lifestyle.  That is on hold for an indefinite time.  I do not feel comfortable talking, which is the main part of what I do.  I plan on writing a book as my mind is still the same as it was before this happened.  This was I do not have to speak to anybody and explain what happened.  At least not yet.

 

 

5 Replies
  • naquinp
    naquinp, December 28,  2018  7:59pm EST

    I just signed up at this forum and yours is the first I have read - I think you should spend your time working on that book and stay positive - I hope the best for you - Preston Naquin 

  • AHAASAKatie
    AHAASAKatie, December 29,  2018  7:44am EST

    Good morning, I am so sorry that this happened to you. I can share the information we have on Stroke/Afib although I understand your doctor is more ruling this out than anything. There are times that the cause of a stroke is not ever known. This is called a Cryptogenic Stroke. Please know that we are here for you and look forward to learning more about you and supporting you through this time. Best Katie 

  • Spooky75
    Spooky75, December 29,  2018  2:04pm EST

    Hi Donna,

    Thanks so much for sharing your story. So many of us can relate to the frustration you’re feeling right now. I had my stroke 6 months ago, and they didn’t know what caused it. It wasn’t until a couple months later that we discovered it was caused by sleep apnea. I felt isolated and frustrated. I still feel like most people can’t relate to the daily issues I deal with, so I’m so glad I found this site and other groups. We all care, and we’re here to help however we can!  

    Korrina

  • TimJ34
    TimJ34, December 29,  2018  5:06pm EST

    I feel the same way. I don’t think they actually know what caused my stroke. They say high blood pressure but I never was diagnosed with high blood pressure. The highest it ever was it was 140/90... I know people who are walking around today with much higher #s...I feel like most on this site that I feel so alone.... nobody seems to get it and that is very frustrating 

  • JKViggiano
    JKViggiano, December 29,  2018  6:13pm EST

    Hi donna1929.  We always thought stroke only happened to older people too.  Turns out 25% of strokes affect people under 65.  

    My husband survived a massive stroke at 51. No risk factors. We were determined to try to make something good come from such a terrible experience so we became inspirational speakers!. Our story is about stroke but everybody faces something.  I am always humbled by and appreciative of all the people who come up to talk to us afterwards and tell us their painful secrets.  Turns out a lot of people are suffering but don't feel safe sharing. When we share our story, others feel safe sharing theirs.

    By the way, my husband still has great difficulty speaking so he reads his speech. I handle any extemporaneous conversation. 

    When you are ready, I hope youi chose to talk about the experience.  So many survivors feel alone--one, because stroke is isolating, and two, because they can't find anyone like them.  You just might become the best coach ever because you have had to face bigger challenges than most.  As with many things in life, recovery only ends when we decide to stop trying to recover. You can be your own example to your clients of what effort, determination, and goalsetting can do. Good luck.

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