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SantaSteveB, October 21,  2020  9:15pm EST

Hello out there

Hello my name is Steve. I am 60 years old and six months ago I had a stroke. I currently have a JG tube for eating, and can do most everything I could before with the exception of swallowing and I have double vision. I've been through rehab, therapy, and have seen every doctor that could help. And they all tell me the same thing... it's going to take time. And to be honest, I'm not one for waiting.

I realize that I was extremely lucky to have gotten to the hospital and TPA'd within the first hour of the onset of my symptoms. I could be much worse than I am.

It has been very hard to find anyone to talk to who understands.Or anyone who has an idea of what to do next.

I hope to be more active on here, and look forward to meeting everyone.


3 Replies
  • AHAASAKatie
    AHAASAKatie, October 22,  2020  10:27am EST

    Good morning SantaSteveB! I love your photo and I am very glad to have you here with us. We do have a large stroke community and I am sure that you will find people to talk with and share experiences. I can share the information we have on living with the effects of stroke and I look forward to reading our members' responses. 

    Best Katie

  • Matthew1
    Matthew1, October 22,  2020  11:10am EST

    Steve, I understand!!!!!!! I'm so sorry to read about your experience but you are NOT alone! I had a severe stroke at 47. Like you, I was not a very patient person but in order to attempt to heal emotionally and physically you must retrain yourself . The healing process is not the same for every person but working your tail off and giving it time is imperative !! A key is to go one day at a time. Don't pressure yourself. I found that pressure works against your goals. Some days will be easier than others. Some days will be sad. Some will be happy. You're only 6 months removed from a brain trauma. It can take years to feel "normal". It could be a "new normal" . Please be kind to yourself, eat healthy, work hard, sleep, sleep and sleep some more. Also, reward your hard work by doing something you enjoy (movies, reading, walking, writing) doing so can create positive thoughts and allow you an outlet for any frustration. This could be the toughest thing you'll ever face. You are more mentally tough than you think you are !!!! You can do this !! 
    we're here for you.

  • JKViggiano
    JKViggiano, October 22,  2020  11:58am EST

    Hi Steve. Matthew has given you some good counsel.  Like any injury, healing takes time. Our brains are so amazing! They take longer to recover. 

    It IS hard to find people to talk to! We had a hard time finding support groups that were proactive.  We wanted to recover, not settle in.  We created our own team: my husband and me, our PT/OT, and a few friends that stuck with us. These few people made all the difference.

    I encourage you to do 2 things: keep trying new tactics to recover and get exercise. OK, 3 things--have some fun. The only way to keep going is to not burn out. Your brain creates new paths when you learn new things, exercise increases oxygen and bloodflow to the brain, and fun makes life worth living.  Recovery is always possible as long as you are willing to work for it. Good luck.

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