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TimJ34, December 28,  2018  2:08pm EST

Had a stroke 9/20

and it was siad the clot went to my thalmus on the right side. I presented with a numbness/tingling sensation on my left side. The same tingling still exist on the left side and some days more intense than others. I've spoken to my neurologist and explained that due to where stroke occured ,thalmus ( responsible for sensation) that this was normal.  I am reaching out here to see if others have this same sensations and how long should i expect for this to be ?

5 Replies
  • KAMB50
    KAMB50, December 31,  2018  12:06pm EST

    I had the same thing - deep brain stroke in the thalamus. That was mid-July of 2017. It's almost 2019 now, and I'm still numb on my left side (entire side from scalp to toes, with my left thumb and pointer finger the numbest part of my body). Same as you - some days I feel it more than others, but it is always there. My doctor told me that eventually the tingling/numbness may get better. But so far, no change. I also find that keeping busy takes my mind off of noticing it.

  • TimJ34
    TimJ34, January 1,  2019  8:17pm EST

    KAMB50... thanks for the reply . How did you initially handle it mentally ? I find myself getting emotional very easy . My strongest sensation is on the bottom of my left foot and they said the same thing to me. I am currently seeking someone ( therapist) to speak to. People close to me say they understand but how could they... it didn’t happen to them... I keep saying that I’m gonna beat it but sometimes I question it.....BTW, Happy New Year. 

  • KAMB50
    KAMB50, January 17,  2019  10:47am EST

    Sorry for the delay. Couldn't figure out how to see if anyone had responded to my comments.

    Well, in my case it took over a year to find out I actually had a stroke, believe it or not! My MRI's did not show it. So while I originally went into the ER saying "I think I'm having a stroke," since they couldn't find it I spent over a year thinking I had either MS, ALS, Parkinsons, and all other kinds of things. I had muscle tests, nerve tests, mutiple MRI's, etc....all showing nothing. You can imagine how frustrating that was! I finally had a neurologist and my primary doctor tell me that I just "had to live with it." At that point I reached out to the Mayo clinic in Jacksonville myself to get an appointment; I got my GP to finally refer me. THEY are the ones who did another MRI (apparently they have a much higher -resolution scanner and also "sliced" the images much smaller.) Imagine my relief - just to know something finally :)   And BTW the Mayo Clinic is incredible!

    Sorry for being so long-winded, but all that is to show you that I went through over a year of worry - not really knowing what was going on, and when it might happen again. I really put my faith in God, as I realized that none of what was happening to me was within my control. That's a bit freeing. The other thing that helped was when the Mayo doctor told me how lucky I was. Apparently strokes in the thalamus normally don't end well - you could die, you could have ended up not being able to recognize familiar faces, you could end up in a coma the rest of your life, etc. So, while it sounds counter-intuitive, we are actually lucky to have survived, and to "just" have some numbness. 

    And by the way I did feel really tired, and emotional, for a little while when I first had the stroke. It DOES get better. Again, I am still numb (especially in my thumb and pointer finger on my left hand), but when I keep busy I really don't even notice it.

    Hope this helps - a little :)

  • TimJ34
    TimJ34, January 17,  2019  5:52pm EST

    Thanks for responding.....can never be long winded being a "stroke survivor" and hearing your story. All I can say is WOW. I definately feel better emotionally today vs my last post. I have sought professional counceling and somewhat has helped me. 

  • Chuck1957
    Chuck1957, January 17,  2019  6:30pm EST

    Dear Tim I am new to the forum and I saw your story. I had a right thalamic stroke on 3-31-2018 left thalamic leg pain, left facial numbness,hot cold sensations hypersensitivity too touch left arm and abdomen. I use a ted hose for the leg pain which works ok, that pressure feedback “ fools the brain” and decreases the negative sensations. Also mirror mirror box therapy, which a therapist showed me, you put a floor length mirror on the effected side so when you look into the mirror you see your good side and do a series of repetitive exercises.it fools the brain, that is the only time that the pain has gone away. Creating new neural pathways. Hang in there just hang in there a thalamic stroke seems like pulling a lever on a slot machine.

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