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Shehay, December 25,  2020  12:15pm EST

Coming home

My 68 yo husband is coming home in January. I am the only caregiver. I’m terrified, of not being able to take care of him properly. I have no idea as to what I’m in for because of covid I’ve not seen him except through a window. Any advice would be helpful at this point.  Thanks in advance. 

2 Replies
  • AHAModerator
    AHAModerator, December 26,  2020  2:59pm EST

    Thanks for sharing your story with us. We're sorry you are going through this tough time. Stepping into a new caregiving role can be a frightening experience.
    Here are some resources we can share with you from the AHA website on caregiving:

    Let us know how your husband is doing in his recovery.

    Please remember you are not alone and the Support Network is rooting for you!

  • axnr911
    axnr911, December 26,  2020  8:27pm EST

    I don't know the extent of your husband's injury due to stroke.  I can offer my experience with my stroke, which was 2 1/2 years ago--seems like just a little bit ago, as I am still recovering.  It's wonderful the way one continues to improve even over thiis long time period. First I was totally paralyzed on left side in hospital.   When home first I took a few steps with a walker, then weeks later it was a cane, a few weeks and then no cane.  Then months of adding number of steps to my daily walk.  Now I walkover a mile a day..It's important to have the right equiment for a while.   At first we had a bath transfer seat and toilet rails.  At first he helped me get to the bathroom, but soon I could get there myself.  My husband stayed with me during bath times at first, but after a couple of weeks he would leave me to myself.  He did all the cooking, etc. at first. But over the months I began to do a few things. Now I am back to cooking, cleaning and gardening, but I have to watch my energy level.  I still tire easily.  This is very common I guess because the brain and body are working so hard to do things.  It's expected that your husband may be angry with his situation, but try to encourage a positive atitude and work every day on trying to use the body to get better--hand exercises, leg lifts, whatever little he can do.  I had physical therapy for four months 2 times a week.  They helped me tremendously.  Find any stroke websites and chat rooms that you can. Another one is called My Stroke Guide. They'll help with ideas and for you and your husband to communicate with others in the same boat.   I had counseling for a while as I was getting depressed.  It helped. We all have different cases and challenges, but if we keep positive and work at it there can be improvement.  Wishing you both the best of luck! I'll remember you in my prayers tonight.  Love, Jeanne

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