PattiRaye
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PattiRaye, December 20,  2020  3:27pm EST

Any tips a d ideas for recovery welcomed

My sisters and I are advocates for our mother who suffered a severe stroke to the left side of her brain on October 16th.  This has been an emotional roller coaster like no other .  Mama lost her ability to speak, swallow, and movement in her right side.  She spent 2 weeks open the hospital, 2 weeks in an acute rehab facility and is now in a skilled nursing facility.  One thing we realized straight away is that we have to be her full time advocates in order for her to get the best care and best rehabilitation available.   She shows small improvements each week and we celebrate everything new thing she does or skill she recovers.  We have not been able to physically touch her since before Thanksgiving due to COVID but thanks to come incredible health care workers and therapists one of us gets to FaceTime with her everyday.  
 

the main thing that we have learned thru this so far is that there is such a lack of patient advocates in the hospital systems for stroke patients who have no family if their own.  We had to push very hard at times for our mother to get the therapies that she needed and because she could not speak for herself, we had to speak for her.  Unfortunately so many patients do not have anyone to speak on their behalf.

1 Reply
  • AHAModerator
    AHAModerator, December 23,  2020  6:30pm EST

    Hello, 

    I am so sorry to hear about your mother's severe stroke. I can only imagine how difficult this time must be for you and your family, especially due to restrictions related to the COVID-19 pandemic.

    I'd like to share some resources on Life After Stroke that you may find useful as you continue to aid in your mother's recovery. These resources include tools and information on rehabilitation. 

    It is terrible that stroke patients sometimes struggle to find an advocate who can help them through hospital systems. I am glad that your mother has wonderful support from you and your sisters amidst this challenging time. Please continue to update us on how your mother is doing.

    Best Wishes,

    The AHA Team 

     

     

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