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TS1949, August 10,  2019  9:43pm EST

Acceptance of Stroke condition

This is my first posting to this site and as I write I feel somewhat guilty of complaining  about my condition. I stroked after having a quad bypass and it was detected in the ICU but too late to reverse. In the beginning, my right side was severely affected but a year and a half later after months of rehab and home health care, I am left with walking like a drunk on the right side. My main question  deals with how do I accept this condition that daily wears me out ? I am always tired and it's really getting me down. Will this ever change? My neurologist said it can take up to 2 years to regain full recovery. Help!

2 Replies
    JOAQUIN, August 10,  2019  10:17pm EST

    Dear TS,

    I'm not a physician, so I can't diagnose or even offera helpful reponse to your condition. My wife suffered a pontein stroke last November. My first thing was to leaned as much as I could about this type of stroke. Next, I found, quite by chance a book written by a Harvard-trained and published neuroanatomist, Jill Bolte Taylor. The book is entitled MY STROKE OF INSIGHT. It is an essential read for anyone who has suffered any type of stroke, I feel. It took her 8 years to retrieve the person she was, prior to her 1996 left hemisphere hemmoragic stroke.

    E-V-E-R-Y stroke survivor is different; every prognosis is different. remember, doctors deal in facts. Once they know the facts they proceed to "cure" the illness by what they [think] they know. Another book I'd highly recommend: "Positrends or Negatrends", by Eric Butterworth. The subject matter is about metaphysics. The chapters I would draw your attention to are Chapter 3 and 5. Chapter 3 is entitled, "Managing Your Own Health Care." To the uninitiated, it is a "woo-woo" subject, to be sure. For me, I've been a student of metaphysics for over 50 years and I still have days of difficulty coping. I hope that you are able to purchase one or both of these books. I'd love to hear your reponse!

    In the meantime, please know that we are all here to support and encourage each other on our individual roads to healing.

  • Matthew1
    Matthew1, August 12,  2019  7:27am EST

    I’m very sorry you’re struggling. You’re not alone. Although a medical professional is the only person who can give you details about your condition, I can tell you that accepting that you have “changed” is important. It’s been 3 years since my stroke and still struggle with major fatigue and many physical limitations. My advice would be this: celebrate every milestone and acheivement. Look ahead and be patient and good to yourself. It can be daunting but adjust your mindset and focus on the things in life that bring you joy. I hope this helps. Good luck. 

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