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Suzanneaspy, June 12,  2019  11:46am EST

Loss of taste and sensation

Since my hemorraghic stroke I lost about 80% of my sense of taste and loss of sensation on the right side of my face, my lips and mouth, my head, and my right hand.  Some days are better than others.  It seems like when I have a stressful day or get depressed, everything seems to feel worse, or maybe I just notice it more.  Does anyone else have any of these?

2 Replies
  • AHAASAKatie
    AHAASAKatie, June 14,  2019  9:29am EST

    I am so sorry that you are having to manage this! I can share the Life After a Stroke guide that may help you.  Please know that you are not alone in this! Best Katie

  • WoodsLady
    WoodsLady, July 24,  2019  12:02am EST

    I had a subarachnoid hemorrhage in March 2019, Suzanneaspy.  I'm fortunate not to have lost sensation as you have, but my sense of taste is indeed diminished/changed. You know how it feels when you've "burned" your tongue drinking something too hot? That's how my tongue feels all the time now. I can still taste, but not as keenly as before, and things just don't taste the way they used to ... How long ago was your stroke? Am curious as to whether this changes over time. My neurosurgeon told me that it would be at least a year before I'd know exactly what abilities/characteristics would "come back" ... and that some people even have more recovery between 1-2 years.

    Stress/depressed/tired sure seems to make everything feel worse with me, too. My neurosurgeon & every PT I've worked with (in rehab centers and currently home health PTs) have emphasized that the brain heals slowly, and is roller-coastery (good days/bad days/good days) & much patience is needed ~ and that one should NOT try to do too much too soon. And that, unlike exercise for the body, one should NOT push the brain beyond its tired/done-for-now point ... Hope this helps you a bit. Seeing your post helped me!


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