Kendra7322
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Kendra7322, April 9,  2020  11:59pm EST

I have so many questions

4 years ago while pregnant I suffered a Hemorrhagic strok. Since then I had so many questions but no answers. I suffer from short term memory damage. I get confused a lot and can't really comprehend things that's told to me. I have right vision impairment. I sometimes still loose my balance. I just want to know is there someone else out there that can relate?

9 Replies
  • AHAASAKatie
    AHAASAKatie, April 10,  2020  8:34am EST

    I am so sorry that you are having to experience this. I can share the information we have on life after stroke.  Many stroke survivors share the same symptoms you are listing. Have you talked to your neurologist about the continued challenges? Are there options for more rehab or other treatments that could help you?

    Please know that you are not alone in this. 

    Best Katie

  • Kendra7322
    Kendra7322, April 11,  2020  9:38am EST

    Yes I asked my neurologist but they don't have answers. I was hoping I can meet people that is having the same issues as me. And thank you so much I'm glad I came to this site. My counselor told me about it.

  • CarolLee
    CarolLee, April 13,  2020  8:43pm EST

    I am sorry to hear of your frustrations. My husband had his hemorraghic stroke 4 years ago also. His main struggles are physical. But we belong to a couple support groups and we have several friends in those groups with similar issues as you. I can tell you it is unfortunately very common. It is hard when your difficulties are not very visible to others. I have heard of some things people have had success with that I can share with you.

    For memory, people say using an echo or other similar device is helpful. You can set reminders on it and l it can give you answers on how to do things or even just what day it is very easily. Another suggestion is to always carry around a notebook or calendar. If you have a smartphone you can use text to speech in the notes section to help with short term memory. I know some people that get confused more when they are tired or later in the day. They try to plan their day accordingly. 

    It must be such a frustrating thing for you. I also do think its best to be honest with those around you. I know friends of mine that struggle with this issue who are forthcoming with things that are more difficult so I can be sure to not switch topics too quickly or give enough wait time in conversations. 

    If you are able to get more physical therapy for the balance, and speech therapy for memory, that may be another idea to look into. My husband goes back for PT and OT various times in the year for therapy. 

    I hope some of this helps and makes you feel not so alone.

    Carol

  • JKViggiano
    JKViggiano, April 13,  2020  9:08pm EST

    Hi Kendra. My word of encouragement is to keep trying things that might help.  Recovery is always possible.  My husband's stroke was 12 years ago. We saw improvemement for about 10 years (with work).  We tried everything!  Some normal therapy and some "out of the box" stuff--anything that made him work his brain and his body. Now we are doing Tai Chi to help with memory and balance. 

    After all these years, I have concluded that continually trying new things has had a huge effect on his recovery. We try to make it all fun which makes a big difference too. Try to not get discouraged. It is hard but it is worth the effort.

     

  • Cynthiaa
    Cynthiaa, April 14,  2020  8:36pm EST

    Hi Kendra, 

    I relate.

    I am sorry to hear about your hemorrhagic stroke event. Along with the great resources that have been mentioned for you in the previous comments.  

    I want to share with you something that I have not shared with others.  When I was quite young I had an infection in my circulatory system that resulted in several strokes.  As you know recovery, is full of anger and confusion. As I learned to write and button my garments, I also learned the power of wiring my brain.

    I  struggle with memory, words, and balance.  

    For memory I found that training apps like luminosity helped me overcome some areas that I fell short,  I also practiced yoga and Pilates which made a real difference in my balance - I sometimes fall over in class but the things we do in regualar llfe I am able to ace.  It is possible that those 2 items or something like them will give you the extra humph and direction to keep working.  As JK said it is all worth it. 

    The answer for me was to continue to do what I always did.  

    Please let me know how I can support you. 

    Cynthia 

  • Kendra7322
    Kendra7322, April 15,  2020  3:12pm EST

    Thank you guys so much. It's been really hard finding people to relate. They just look at me as if I was making it up. The things you guys mentioned I about to start doing today. Do any of you have lost vision due to the stroke?

  • Cynthiaa
    Cynthiaa, April 15,  2020  9:41pm EST

    Hi Kendra, 

    I do not have sight degradation.  I initially had double sight but that left early on.  
     

    Please let me know how to support you in your ventures. 
    Cynthia 

  • Kendra7322
    Kendra7322, April 16,  2020  6:28pm EST

    Thank you so much I really appreciate all the helpful advice. If you guys have any questions for me don't hesitate to ask.

  • Mdrus
    Mdrus, May 30,  2020  7:36pm EST

    Hello Kendra: 

    I am a caregiver for my daughter who had a hemorrhagic stroke at 37. She is now 40 and continuing to make progress. I would love for you to connect with her. If you are interested let me know.

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