AL1984
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AL1984, July 21,  2019  9:59pm EST

Frontal left lobe hemmoragic stroke

My Mom suffered a hemmoragic stroke nearly four months ago. She experienced symptoms days before but did not interpret them as stroke. On March 31, she woke up and could not move her right arm at all, it was completely immobile. We got her to the ER that morning and found the issue,she had close to a one inch brain bleed that ended up being around an inch by the time the vitamin k helped stop it that evening. She had stable scans following the initial bleed in the following days. She spent 17 days in the hospital (I think 11 in ICU for nuerology and the rest were on a cardiac intensive care unit). She is on Coumadin, which complicates the fact that she had a brain bleed. She has her levels checked very often. My question is about her pain. She began to regain some movement in the hospital (pushing forward, pulling her arm back, touching her nose with finger if she thought about it enough). She had PT and OT during her hospital stay but nothing after. She continued to do exercises and work on her rehab on her own at home (uninsured due to financial reasons). She made a lot of progress in the right arm (her only deficit) in the first few weeks. Then, she started experiencing a lot of pain in her arm, wrist, and hand area. Her upper arm feels heavy (but not numb) and she is in pain every day. Will the pain ever go away? She rotates heating and ice pads to help. We are hopeful that she will make a full recovery. The end of the month will be four months since her stroke. What could be causing so much pain and is there anything that will help (besides therapy, as that isn't an option)? Thank you. 

8 Replies
  • AL1984
    AL1984, July 22,  2019  8:14am EST

    Does anyone have advice about how long the pain will last due to your experiences or someone you know? 

  • AHAASAKatie
    AHAASAKatie, July 22,  2019  10:14am EST

    I am so sorry your Mom is having to experience this. I can share the resources we have on managing pain after stroke Thanks Katie

  • JeffB
    JeffB, July 22,  2019  11:43am EST

    AL1984,

    I'm not a Dr but I can speak from observing my friend Nick who had a massive brain bleed two years ago. He is on some sort of drug to mitigate the pain from nerve damage. I would ask your mom's cardiologist if this may the case for her or if she is already on a drug to help with that which may be a candidate for revision.

    Good luck,

    Jeff

  • Spooky75
    Spooky75, July 22,  2019  1:01pm EST

    Hi, 

    I'm part of a Facebook group of female stroke survivors, and many of them have talked about having post-stroke pain, so it seems fairly common. I agree with Jeff about seeking out medication to help with the nerve pain.

    I wish your mom all the best in her recovery - and I thank you for being there for her.

    Korrina

  • AL1984
    AL1984, July 23,  2019  9:17am EST

    Thank you everyone. She has an appointment in a couple weeks. Which Facebook group are you a member of, Korrina? I am not having much luck at all finding any! 

  • AL1984
    AL1984, July 25,  2019  7:53am EST

    Is there anyway for me to tag Spooky75 to see if she can share which group she found on Facebook? Thank you!

  • AHAASAKatie
    AHAASAKatie, July 25,  2019  8:50am EST

    Hello! You can post a comment on her profile page if you would like. Just click on her name and it will take you to a comment section. Thanks Katie

  • Spooky75
    Spooky75, July 25,  2019  10:07am EST

    AL1984, 

    The Facebook group I joined is Female Stroke Survivors. It's a women-only forum where we talk about everything in our lives that has been impacted by the stroke. Some of the information shared is quite personal, which is why it's a gender-specific group. 

    Let me know if you'd like more info!

    Korrina

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