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The New Me
Hi I had my stroke on 10/20/18. My pcp and neurologist cant seem to give me any answers as to why i had my stroke. I had the brain MRI, cervical spine MRI, ECHO, carotid doppler and all test show nothing. I was sent for a sleep study and found out that i do have sleep apnea those results showed i had 15 episodes an hour, possibly that had something to do with my stroke, I dont know. I am left with complete numbness and no sensation on my right side, I have short term memory loss, and have been experiencing something new recently. I now laugh uncontrollably at absolutely nothing and am extremely emotional. My current Neuro doc wants me to go to a specialist and Elastro physiologist to have a catheter ablation of my heart. So at that point i decided to make an appointment for a 2nd opinion and I am so looking forward to this appointment to see if maybe they will see something the other neuro doctor missed. I hope at this next appointment i get some answers. I understand that this is the new me, i am not the same person i was before my stroke, however I strive to be that person again.
TEAMGUZMAN, December 28, 2018 12:06pm EST
Hi Denise! So glad to know you! I too had a cryptogenic stroke. They ran every test on me possibel, and have no clue where mine came from. I have not yet been to a doctor for sleep disorder, but I plan on doing that in the New Year. I am also type 2 diabetic, which also may have been part of the cause. It is very frustrating to say the least, when we do not know how it happened. I too suffer from bouts of crying, sometimes total crying meltdowns. I do not have a problem with the laughing, just crying. My short term memory was affected as well.
Also, I have trouble with a bit of long term. My right side was affected as well- numbness and loss of feeling in my fingers. I can only type at work with my pointer and thumb..
If I mays ask, why are they doing a catheter ablation of your heart? Is that another procedure to find out where the stroke originated? Thank you so much for sharing your journey with us. We are here for you!
God bless, Toni
AHAASAKatie, December 29, 2018 7:36am EST
Good morning, thank you for sharing what is happening in your world. Stroke can affect your emotions and your behavior as well. The laughing at odd times could be the Pseudobulbar Affect (PBA) There are drugs and therapies that can help you manage PBA and it is worth a conversation with your doctor to learn more. Please let us know what you are told and how things are going. Best Katie
Spooky75, January 1, 2019 2:07pm EST
Hi Denise! Thanks for sharing your story. I had a cryptogenic stroke 6 months ago at age 42. A few months later, I was diagnosed with severe sleep apnea, and they think that’s what contributed to my stroke. But I understand that frustration and fear of not knowing, and worrying that it’ll happen again. Just remember that you’ve found a supportive community of survivors here, and we’re with you every step of the way!
DolphinWrite, February 21, 2019 3:35pm EST
My brother-in-law has that sleep apnea thing, too. Apparently, he was like you, sometimes a minute at a time. They said that could have led to strokes, heart attacks. He now sleeps with a portable machine and all is well. Thanj goodness for modern medicine, but you still have to be your own advocate. With my heart attack, they often don't make a move unless I tell them concerns. Take care.