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Dean0124, February 9,  2019  7:56pm EST

Stroke question

I suffered a large cerebellar stroke on 12/9/17 at 55 years old . My symptoms were extreme dizziness,vomiting,and inability to walk .Being a bull headed long time carpenter I did not go to hospital for about four hours .my stroke was found through testing and brain MRI.i was admitted to hospital for three days doctors were amazed I was doing well after such a large of a stroke . I had a echo bubble study which revealed a large pfo. I then received a lot of testing to determine what caused stroke .ultrasound legs, Ct angio abdoman and pelvis,Ct chest pulmonary angiogram etc.  everything came back normal and stroke was considered cryptogenic caused most likely by pfo . I had my pfo closed 4/19 /2018 at mgh Boston! What an incredible team of doctors! I am doing well physically. The question I have is I still struggle with some mental things like worry of another stroke happening,being overwhelmed ,and sometimes noise bothers me. Any feedback would be appreciated! Thank you 

5 Replies
  • AHAASAKatie
    AHAASAKatie, February 11,  2019  10:08am EST

    Thank you for sharing this with us! Life after a traumatic event such as a stroke can be challenging. I can share the information we have regarding life post stroke and I encourage our members to share their experiences and how they managed anxiety about another stroke as well. Please know that we are here to listen, share and support. Best Katie 

  • Kdogg240
    Kdogg240, February 11,  2019  11:07am EST

    Hey Dean, my wife had a stroke back in 2016. She has aphasia and struggles with to many noises. It can cause confusion and  makes her as she describes “funky”. We both also struggle with the thought of her having another stroke. Her neurologist and neurosurgeon believe she will definitely have another stroke at some point in her life. This is hard to think about as we have a small child. The only advice I can give you is to live life day to day. Appreciate things that make you happy. Don’t focus on the things that you have no control over. But focus on the things that are in your control like keeping up with you doctor visits, and if you can focus on diet and taking care of yourself. Keep a positive additude, just enjoy everyday that you have on this earth. These are things that have helped us get through the darkest times. We have finally found our comfort with our new normal and have our minds in the right place for healing. It took us a while. Try and get support from friends and family if possible. And of course this website is a great place for advice and encouragement. Good luck to you and we are praying for your speedy recovery. 

    Sincerly Kevin

  • Spooky75
    Spooky75, February 11,  2019  11:31am EST

    I can completely relate to the anxiety/worry! My cryptogenic stroke happened in my sleep, and while doctors assume it was caused by sleep apnea, I don't think we'll ever know for sure. I was afraid to sleep for months after. I'm on an anti-anxiety med, which helps.

    I also struggled with noise. This has gotten better over time (it's been about 8 months since my stroke), but I, too, still get overwhelmed sometimes with noise or lots of activity going on around me. I hope that gets better, but if it doesn't, it'l be something I'll just learn to live with.

    I suppose for me, it's all about getting used to the new normal - and then getting other people to understand that new normal.


    TEAMGUZMAN, February 11,  2019  2:20pm EST

    Hi Spooky75!


    A few months ago, you mentioned about the sleep apnea possibly related to a cryptogenic stroke. I said I would keep you posted! So Thursday I did a at home sleep study, and I go back to the doctor on the 21st. My neurologist recommened that I get this test done, and sent me to a piulmonary doctor, I am anxiously awaiting news. Inn some way, and I know it sounds terrible..but I hope they find this was the cause. living each day not knowing where it came from can cause me much anxiety.


    Stay tuned! xo Toni

  • DolphinWrite
    DolphinWrite, February 21,  2019  3:44pm EST

    I'm going to play both sides of the coin for a minute.  You have good concerns, which means asking questions, talking to your doctors and others, researching, but also improving habits.  On the other side, while you'really recovering, none of us know what tomorrow will hold. I had my heart attack while cycling, eating decently for the most part, and on holidays.  Never saw it coming.  Something could happen tomorrow, or down the road, but I told myself I don't want to live that way: worrying.  Then, I think, more things tend to bother.  I'm working on getting better, going back to work, taking on hobbies and a blog, and some social.  All the best to you.  My dad had, what we believe, we're mini-strokes.  We encourage him to enjoy what he has.  I think he''s doing better.  God bless.

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