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Ryanjay160, October 9,  2020  2:34am EST

Not sure of next step

Hello im Ryan. I am 33yrs old. I had three strokes in july. Cause is unknown. I live in a small community so no hope of support groups here. Im just past 90 days from my last stroke. I have yet been able to get into seeing a neurologist since i was released from the hospital. The local clinic i go to as my primary care has assigned me to a new doctor. I am having trouble understanding him through his accent. I am out on short term disability from work. Now the 3rd party company who handles my employers short term disability has requested a work accommodation form to be filled out. The doctor has no clue how to respond. He doesn't remember me from visit to visit. He has me in for an appt. Every other week and spends the first half of the appt reminding himself of my case. My options are limited to this clinic for care as it is funded through my employer. I dont know what to do. I had 2 speach therapy appointments then the office called and said the speach therapist was returning to school and no longer filling appointments. Evaluated by physical therapist and there is no physical issues to address. I have made great strides but my head is such a mess i dont know what to do. Im scared at the thought of returning to work. I am an underground miner. I have attempted driving today and was pulled over 2 blocks from my house for swerving and driving too slow! I feel I have a slow reaction time. Any help is appreciated 


4 Replies
  • AHAASAKatie
    AHAASAKatie, October 9,  2020  9:13am EST

    Good morning, I am so sorry that you are having to manage this! I have some options for you to try. 


    1. Call the American Stroke Association’s Stroke Family Warmline: 1-888-4-STROKE. The people working on our Warmline are specially trained and have personal experience with stroke. They are there for you, to listen and to help you get the information and resources you need.

    2. Also try the Patient Advocate Foundation (PAF) at www.patientadvocate.org  The PAF is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors, and attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. 

    3. Another option is to contact the Patient Advocacy Network (PAN) at www.panfoundation.org  for assistance. 

    4. United Way’s 211 program is a free, confidential referral and information helpline and website that connects people of all ages and from all communities to the essential health and human services they need, 24 hours a day, seven days a week. You can get more information at www.211.org 

    Please know that we are here to help you through this. 
    Best Katie

  • Ryanjay160
    Ryanjay160, October 9,  2020  2:28pm EST

    Thank you so much I will call and see if they can help me

  • kbragg1970
    kbragg1970, October 9,  2020  9:55pm EST


    I am 49 and had a cerebral hemorrhage in August. I am thankful there are resources such as this to connect you with professionals that I hope can help you. I understand the feelings of fear. I was in Mexico working when mine happened and had overwhelming anxiety related to the stroke, hospitalization, rehad, covid, traveling, and the future of my career. I hope each day is improving for you. 


  • axnr911
    axnr911, November 27,  2020  2:21pm EST

    Hi Ryan--I had a stroke 2 years ago.  When I was released from the hospital they told me I had to make 3 appointments immediately--my G.P, a neurologist and a cardiologist. I saw them the first week upon release.  The one that helped the most was the cardiologist.  He discovered that I had afib,  which I never felt, so was unaware of.  That was what had caused the stroke in the first place.  If I had not seen him I  wouldn't have found out and was at risk of another stroke.   I was put on Eliquis and a med. to stop the afib.  It took 3 different med. tries before we found one I could tolerate, which was dilitiazem.  Bottom line, keep pushing to discover why you had the stroke. A neurologist probably wouldn't pursue the afib angle, or other stroke causes.  If you don't like your present doctor, demand another one.  Your health is at stake.  Remember, squeaky wheel gets the oil!  Best of luck to you.  Love, Jeanne

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