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rscolter, November 8,  2018  1:13am EST

Cryptogenic Stroke

I also had a cryptogenic stroke in December of 2015. I was a serious athlete who started playing sports at age 4. I had my stroke at age 53. It came out of nowhere with no warning. Sent text to daughter & told her something was wrong. Gave her symptoms of right side paralysis, vomiting water, room spinning. She stated ‘Dad you’re having a stroke’ (Physician Assistant). Told her I think I’m just having a balance problem. Paramedics arrived but I didn’t have a gauge on how long it had been when it started (so no Tpa). Doctors found very small blockage in PONS area after 2 Cat-Scans and finally an MRI. Recovering, but excessive sleep and strained right-side mobility. Have found that injury massage, learning new language, and incremental weight lifting has helped. Can’t shoot a basketball more than 5 feet. Told by Neurologist it is a 5 to 8 year danger for massive stroke recovery! Proving true.

3 Replies
    TEAMGUZMAN, November 8,  2018  8:54am EST

    rscolter- Thank you for sharing a part of your journey. I too had a cryptogenic stroke. However they do no know where it came from, or so they told me. Which bothers me, because I would really like to know. I had two MRI - a cat scan- heart ultrasound esophogeal scope (too look behin heart for clots)- carotid scan. I am wondering if I go should seek a second a second opinion, as maybe another neruologist set of eyes would see where it came from. 

    I am glad that you are progressing well, and you are ahead of th egame beause you are so athletic! Take care of yourself and keep in touch!

    Blessings, Toni 

  • AHAASAKatie
    AHAASAKatie, November 9,  2018  8:59am EST

    Thank you so much for sharing with us! Please know that we are here for you! Best Katie 

  • Spooky75
    Spooky75, November 19,  2018  9:03pm EST

    Thank you so much for sharing your story! What I love about what you shared is that you wrote about what has been helping you, which is great for other survivors to read. It’s encouraging. 

    Keep fighting! Someday soon, maybe you’ll shoot that basketball from more than 6 feet - or even further! 

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