Margeetx
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Margeetx, April 11,  2019  2:35am EST

Home from 4th ablation-NEVER AGAIN

I am a 67 yr old RN, retired 9 months ago.  In 2003, I had a crashing fall on tile kitchen floor and broke pelvis in 9 places.  Since, I have been on 2 hydrocones at night, with very limited other use.   Move forward to 10/15; experienced severe upper gastric pain; i was at work, I knew something was going on but unsure of what. I drove myself to ER; was in surgery immediately for thoracic aneurism. No prior heart conditions-  the next morning,I had a temp of 103, and I was in A-FLUTTER.   Got fever controlled ( never did know cause of fever )and was sent home on Monday.  Uneventful recovery until 2 weeks later- developed a pseudo aneurysm - back in surgery again for repair.  NOTE- the requirement to lie flat for the surgeries and the 6-8 hours of lying on my back nearly killer me. My back was so bad, I couldn’t stand up straight, or sit for more than 30 min at a time, and my 3 day a week, 2 miles was gone.  Followed up with cardiologist and he proceeded to start different meds- flecdicide and xaroltol, sent me straight for ablation because A-FLUTTER WAS OUT OF CONTROL.  Back issues get worse.  Orthopedice begansteriod injections over next 6 months, and finally, insurance approved bilateral rhizotomies.   Back improved greatly except for severe spasms and reduced stamina. Over the next 10-12 months, I continued the hydrocodone at night or no position of comfort would work.  I now had  so much arthritis, degenerative joint disease, that back issues were managed with meds, and a great hot tub.  Heart now goes into A-FIB; unable to handle the cardiac meds.  I was in more A-FIB more than I wasn’t.  Also, I am now on Medicare, I would hit the do-nut hole, and ONE of the meds was over $800/ month. We are not destitute nor wealthy; we don’t qualify for any of the $$$ assistance out there. Finally, we decided to go for this ablation, on Tuesday.  I had told the doctor about the pain issues caused by lying flat for so many hours.  He assured me he would keep me as comfortable as possible.  I told him that if he couldn’t,I would not do the surgery. I really think the nurses in recovery thought I was a “medication seeker” and did not medicate me appropriately.  I cried for 12hours,  and no one cared.  My husband is a retired forensic police officer, and EMT and fireman.  He was furious..... I finally sent him home because if ‘security’ had gotten involved we would be in big trouble.i know that 90% of the time, the ablation has to be repeated ( my first did). Unless they can put me in a medical coma for the required hours of lying completely , I will just deal with whatever.

i am not some crazy person, though I have come close......my 44 year old son died suddenly from a pulmonary embolism, and I will never get over that.

Has anyone else ever had this type of nightmare?  Thanks for letting me get this off my chest.

MargeeTx

3 Replies
  • AHAASAKatie
    AHAASAKatie, April 11,  2019  7:44am EST

    I can only say how very sorry I am that you had this experience. Prayers that you do not have to go through this again. Best Katie

  • yarn007
    yarn007, April 11,  2019  9:55pm EST

    I have to say I get really upset when medical professionals don't listen to patients.   I use to advocate for adults with disabilities in a previous career.   I have seen just what you mentioned when medical staff doesn't listen to what is being told to them and judging people without the facts.    I sure don't blame your husband for being so upset.   What a horrible situation for both of you.   Do think about talking to the hospital's "Patient Representative staff" about your experience.   This information (i.e. phone numbers) can be found in Patient's Rights booklets that hospitals have for patients.   After hours many hospitals have what is often called Administrative Representatives who are in charge after the 9-5pm staff leave.  These Adm Reps can also be contacted when there is a dispute over how a patient is being taken care of (at the time it is happening) or when other emergencies develop.    There are also other (outside the hospital) agencies that can be contacted to report improper care.   These other agencies should also be listed in The Patient's Rights booklets.   

    My heart goes out to you and your husband for such a negative experience when you were in the hospital.   Thank you for taking the time to share your experience with us.   We are all here for each other in the good times and in the bad.   

     

  • Margeetx
    Margeetx, May 13,  2019  12:08am EST

    Katie and Yarn:    Thank you for reviewing my post and responding.   I did write a letter to the hospital and received a kind apology.  I know hospitals are being judged on ‘ the patient experience “.

    Perhaps the nurses need some more training on the importance of listening.

    thanks again

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