Kathy2748
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Kathy2748, November 29,  2019  2:55am EST

Pulmonary Embolism

Hello, I am sister of the person who was diagnosed with PE, she is 22 and was diagnosed with it 2 weeks ago. I want to ask: how should I look after her? Do I have to check up on her every hrs at night? Any suggestions for me? for her? 
 She is extremely scared. 

2 Replies
  • decaf
    decaf, November 29,  2019  4:10am EST

    Is she taking blood thinners? This is the usual treatment. I was scared too but if she is on blood thinners and following doctor's orders, it would be rare to get another embolism. But if after two weeks of treatment she is still having symptoms she should see her doctor again. I had a series of blood tests after the PE to see if I had a hereditary blood clotting disorder, which your sister should possibly do too. If she has one, she might have to take blood thinners for the rest of her life. After having a PE I found that many, many people had one! Never knew this before. And they are all OK now.

  • AHAASAKatie
    AHAASAKatie, December 2,  2019  9:12am EST

    Thank you so much for sharing this with us. I can provide the information we have on VTE and PE's for you. I am a DVT survivor, have a stent and had to stay on blood thinners for little over a year. I can share that as time passes, the fear and concern do subside. However, if your sister or you feel that talking to a professional would help, please know that is a very common response. There are lots of good therapists that can help with the PTSD side of recovery. 

    Thanks, Katie

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