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JOANIEGRL1, February 26,  2021  6:48am EST

What do I do Now?

A few weeks ago I shared my story of my previous doctor's not telling me the truth. Yesterday I saw a cardiologist. He said that I am too young to have Aortic Valve problems, that he feels I have congential heart disease. That I may need some kind of test to determine if I do. He said that they will be keeping an eye on everything, that right now his concern is my breathing and blood pressure.

I thank God that I am still alive and really havent had problems with my heart until recently. I am 49 years old, diagnosed with MVP, heart murmur, and high blood pressure when I was in 5th grade. And my doctors missed it. In the future I may need a new heart. All my valves have problems. I have no clue how to think or what to do next.

1 Reply
  • AHAModerator
    AHAModerator, February 26,  2021  9:03am EST

    Hi there,

    Thank you so much for reaching out to the Patient Support Network. I am sorry to hear that you have experienced confusing answers about your heart health. I can imagine how difficult this must be. Unfortunately, I am not a medical professional, but I encourage you to continue conversing with others on the Support Network and your cardiac care team. Here is a resource that may guide the conversation with your cardiologist around Congenital Heart Disease.

    Please keep us updated on how you are feeling!

    Best Wishes,

    AHA Moderator

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