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eddyr105, September 16,  2020  2:05pm EST

Seeking resources (Please!)

Someone I know has POTS, backflow issues in 3 of her 4 valves, is missing her ventricular septum, and has a comorbid nervous sytem disease. As a single mother and despite her cardiologist's pleas, she is unable to go on disability as it simply isn't enough money for her to support herself and her daughter. She is working herself into the ground with 3 jobs and is still months behind on rent, let alone is unable to afford medication, her needed surgeries, or any other interventions. Can anyone connect me with some good resources that may be able to help her out? Anything from counseling services, transportation, grants, charity organizations, medication fee assistance programs, etc, would be great. She could really use all the help she can get, especially during COVIS. Thanks!

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  • AHAASAKatie
    AHAASAKatie, September 17,  2020  8:20am EST

    Good morning, 

    We do have quite a few resources to share.

    The Patient Advocate Foundation (PAF) at www.patientadvocate.org  The PAF is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer, and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through case managers, doctors, and attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment, and preservation of their financial stability.

    Another option is to contact the Patient Advocacy Network (PAN) at www.panfoundation.org  for assistance.

    We have medicine assistance program information on our primary website, heart.org. 

    United Way’s 211 program is a free, confidential referral and information helpline and website that connects people of all ages and from all communities to the essential health and human services they need, 24 hours a day, seven days a week. You can get more information at www.211.org

    Please let me know if any of these resources are helpful. 

    Best Katie

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