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JOANIEGRL1, January 26,  2021  7:37pm EST

Scared and feeling alone

I was diagnosed at a very young age with Mitral valve prolapse and High blood pressure. I went to all my chech ups stayed on meds and a year ago I had my routine Echocardiagram and was told everything was good. I've been experiencing symptoms for over a year now and told my doctors at the time. I recenlty moved and my new doctor told me I also had Arotic stenoious. I had another echo which showed; mild aortic regurgitation, moderate aortice stenosis, moderate mitral regurgitation which I knew, moderate tricuspid regurgitation and mildly elevated pulmonary pressures. Is it wrong to feel; betrayed, hurt, angry, bitter? My other echo shows that the doctor knew about the valves for a year and since she didnt treat the conditions, I have the pulmonary issue. 

What is normally done for these heart issues, except MVP? So many things are going through my head right now, the main thought is, "If she didn't want to treat me why didnt she send me to someone who would?"

3 Replies
  • AHAModerator
    AHAModerator, January 27,  2021  9:05am EST

    Hi there,

    Thank you so much for joining the Support Network and for sharing your story. I am so sorry to hear you are going through this tough time, but I am glad to hear that you are in the care of a new cardiologist. Unfortunately, I am not a medical professional, but I can share some resources on Aortic Stenosis with you.

    I am glad you have made it to the Support Network, and I encourage you to keep us updated with your journey,

    Best Wishes,

    AHA Moderator

  • AmbassadorDN
    AmbassadorDN, January 27,  2021  12:23pm EST

    Welcome, Joanie,

    I'm so sorry that you are experiencing this! Although I can't surmise why your previous doctor did not bring up your other valve issues with you, I hope that you are developing a good relationship with your new doctor who can advise you on your heart valve issues moving forward. I'm assuming that you are seeing a cardiologist, and not a general practitioner for your echocardiograms and follow-up appointments?

    In my experience, I have only had to deal with mitral regugitation and three heart valve surgeries to treat my defective mitral valve. I'm sure one of our community members or fellow Ambassadors who have dealt with multiple valve issues can best advise you on next steps and give you some insight on treatment.

    In the meantime, take care of yourself and please do not hesitate to reach out if you have any questions, concerns, or simply want to vent.

    To Heart and Soul Health,

    Ambassador DN

  • AmbassadorC
    AmbassadorC, February 9,  2021  8:35pm EST

    Welcome Joanie, 

    We welcome you to the support network with heart as you are among a community of heart warriors who have been there and done that and will support you every step of the way.  While I cannot provide medical advice as to why your previous cardiologist did not treat your vavle issues, what I can say is that I agree with Ambassador DN in that what is important is that you are advocating for yourself now with your current cardiologist.  What I have found from my journey, is that is it vital that you become your own advocate.  If something doesn't feel or sound right to you, you need to get clariiciation.  Your heart needs to be 100 percent comfortable in the hands of your cardiac care team. If not, do not be afraid to get a second and third opinion.  Timing is essential to valve intervention and you don't want to wait another minute if you are not getting clear answers or direction to your underlying conditions.  

    I would also strongly enourage you to take advantage of the resources that the AHA has and posted.  This is a weath of information in terms of diagnosis, treatment options and the like.  Use these resources to educate your self about your situation and don't be afraid to ask your cardiac team follow up questions. Knowledge is power.  

    Please feel free to reach out to us if you have any additional concers or questions since your last posting and if we can help you in any way.  We welcome you!  

    With heart,

    Ambassador C 

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