Joseph84
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Joseph84, April 14,  2021  1:01pm EST

Newly diagnosed with Bicuspid Aortic Valve and LVH

I had few episodes of palpitations and chest discomfort few weeks ago and with this I had rushed to have a Cardiologist visit in the British ****** Islands (currently residing).  He had me on an ECG and 2D Echo/doppler study.  Results are a Bicuspid Aortic Valve (BAV) and Left Ventricular Hypertrophy (LVH).  Further examination was a Stress Test which I nailed it (I guess). In the interim, I haven’t returned to my Cardiologist as I have to do the 24-hour Holter monitoring yet.  I have read that LVH can be controlled by doing lifestyle modification and by medications.  However, for the Bicuspid Aortic Valve is it the intervention for this is only surgery? or will it have determined by my presenting symptoms?

And to be honest, I am worried as the option for a cardiac surgery here (British ****** Islands) is zero to none. 

3 Replies
  • AHAModerator
    AHAModerator, April 14,  2021  3:54pm EST

    Good afternoon, 

    Thank you for sharing your story with the support network. Unfortunately, I am not a medical professional, but I can direct you to some Heart Valve Disease resources for you like this one about Left Ventricular Hypertrophy (LVH).

    As you hear from others on the support network about their experiences, I also recommend reading stories from AHA's Heart Valve Ambassadors to help you learn more about what the recovery process can look like. Please keep us updated on how you're feeling!

    Best wishes,

    AHA Moderator 

  • AmbassadorDN
    AmbassadorDN, April 14,  2021  4:32pm EST

    Welcome, Joseph84!

    I'm sure some of my fellow Ambassadors will be coming along shortly to provide you their experience and insights. Some have had surgery for the aortic valve.

    Although my particular valve issue is with the mitral valve, I do know, since I have a cousin who was born with BAV, that surgery may eventually be needed for people with issues pertaining to the aortic valve. My cousin had surgery a few years ago--a mechanical valve replacement--to address his BAV issue. Because BAV is a congenital defect (CHD), surgery is often required to address the issue. However, don't let the prospect of surgery worry you. Be aware of any symptoms you may have, and partner with your cardiologist to determine the course of treatment as you move forward, especially if surgery becomes an eventuality.

    Know that you have a lot of support here and that you have access to resources to help you learn more about your condition.

    Feel free to ask any questions you may have. 

    To Heart and Soul Health,

    Ambassador DN

  • AmbassadorMR
    AmbassadorMR, April 23,  2021  5:26pm EST

    Hi Joseph,

    As Ambassador Deb stated, BAV is a congenital condition that is diagnosed and then monitored or treated (surgically) based on how severe the aortic stenosis or leaking (regurgitation) is. This was my exact problem that was diagnosed when I was in middle age and then surgically addressed (bovine tissue valve replacement) when I was 60 years of age. You are right to want the very best doctors available to diagnose and treat your BAV condition. Having diagnosed LVH and symptoms of palpitations and chest discomfort usually indicate that your valve is struggling to keep up with the demand placed on it and the situation will need to be corrected in a timely manner.

    All of this will be determined by your cardiologist and surgeon in consult and I encourage you to pursue the process promptly. BAV disease does not heal or get better on its own so when you have symptoms its very much time to get treated. The options will be discussed with you when you meet with a surgeon but as Deb stated, these procedures are time tested and most of us have excellent results and outcomes.

    Feel free to ask any additional questions so that we can assist you in this journey back to heart health. I wish you the very best as you continue down the treatment path.

    AmbassadorMR

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