Freepish81
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Freepish81, October 27,  2019  11:12am EST

New Member!

Hello everyone! My first post. A bit about me, and what brought me to this forum - I'm a 37 year old woman from BC, Canada, and 2 years ago I was diagnosed with a Bicuspid Aortic Valve, which apparently I've had since birth, but had no idea! I was having palpitations and lightheadedness here and there and after a lot of testing, that was the consensus. I was put on 5mg of Bisoprolol to help with the arrythmia, and sent on my merry way with plans to do yearly echos with my checkups. I stayed fairly asymptomatic for quite a while, exercised frequently, etc, normal lifestyle etc - I'm about 30lbs overweight but I've always been active and into clean eating, no other conditions, no blood pressure issues, etc... Then about 8 months ago, I figure, I started increasingly having a hard time exercising without fatigue.. And eventually it got to the point where I stopped being my active self, and slept a lot. I was always tired, the fatigue was awful! I didn't think anything of it until about a month ago I started having lightheadedness again, and when I'd lie down for bed I'd almost be out of breath, and here and there I'd have brief chest discomfort, almost feeling like a stitch in my side, except in and around my left breast and the center of my chest. I went to see my specialist, had another echo, and it appears I now have moderate aortic stenosis as well as left ventricular hypertrophy. I've done a fair bit of research with the heart and stroke foundation of Canada, and the AHA and Mayo clinic's online resources as well, and it seems that an AV replacement would make a world of difference and give me back my former quality of life. My problem is, in Canada, surgery is really the very very last option, the doctors I've seen are conservative in their approach, which I understand. At the same time, I'm young, relatively healthy, and although my AVS is only moderate at this point, my argument is that because I'm symptomatic and my lifestyle has slowed down drastically because of that, I am gung ho and wanting to have it fixed NOW before I'm on deaths door in heart failure, or have a MI, I really want to be proactive. Does anyone have any insight? Advice? Am I totally bonkers to want this dealt with while I'm young enough to bounce back easily?

Thanks in advance for any advice or guidance or whatever! 😊

2 Replies
  • heartmiracle
    heartmiracle, October 28,  2019  6:18am EST

    Hey there Freepish81!

    Proactive is a good thing. I would focus on lifestyle optimization to help your sitaution at first. If you can help the situation maintain with just lifestyle choices, then that's a huge win already.

     

    Secondly if you are really serious (after multiple opinions), you could even consider doing it stateside - although it could be really expensive dependiong on your coverage!

     

    These are my 2cents

     

     

     

  • RhiDiller
    RhiDiller, November 12,  2019  3:19am EST

    Holy cow! This is my life right now! I'm 35, I have a possible Bicuspid and a definite PDA with a lot of our details being very similar.

    I hear you, wishing you the best of luck and I'm here to chat anytime! 😊

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