Kevyn57
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Kevyn57, May 20,  2021  1:30pm EST

Mvp

So, I've had mitral valve prolapse with mild/moderate regurgitation for at least 9 years and have had yearly echos since 2016. Good EF of 60 or better every echo, but echos always showed mild  LV ***********. been mostly asymptomatic except in the last year or so I've had more palpitations, irregular pulse, ectopic, etc. In October 2020 the cardiologist did an echo and my report says normal LV size and mild regurtation. Fast forward to may 2021 and a new echo at a different facility shows moderate LV *********** and severe regurtation. I'm  due for more appointments in July. Can there be this much change in 6 months? 

4 Replies
  • AHAModerator
    AHAModerator, May 20,  2021  5:02pm EST

    Hello there, 

    Thank you for joining the Support Network and sharing your story. I am sorry to hear you are going through all of this and hope you find a sense of community, support, and advice here to help you through this journey. As you wait to hear from others, here are some resources on Mitral Valve Prolapse and Heart Valve Disease.

    Please keep us updated on how you are doing!

    Best wishes, 

    AHA Moderator

  • AmbassadorDN
    AmbassadorDN, May 20,  2021  6:33pm EST

    Hi, Kevyn57,

    Welcome! 

    In my experience, I have had three mitral valve surgeries to address a defective mitral valve (congenital defect), and before my first surgery, my echo results showed significant changes in the years prior to my mitral valve repair. However, echo results can vary depending on the quality of the echo images as well as who reads the echo and observes overall impressions (different cardiologists, for example). Recently, I was in the hospital, and I had several echoes of my heart/mitral valve over the week I was hospitalized. The echo results did vary, but not by much. One report estimated my ejection fraction to be 50% while the other report estimated my EF to be 45%.

    Meanwhile, and this is not meant to alarm you, valve disease can progress quickly and unexpectedly. My first valve surgery was in June 2006, and the year before, my echo results showed mild to moderate regurgitation, but then in early 2006, my echo showed moderate to severe regurgitation. 

    Do speak with your cardiologist about the recent change in your echo results to determine how to proceed. Be aware of any symptoms of valve disease as well and be sure to note anything such as shortness of breath or more frequent palpitations, which can be indicators that your valve is not working properly.

    Feel free to ask any other questions you may have. We have an excellent community here to support you as members can help share their insights and experiences.

    To Heart and Soul Health,

    Ambassador DN

  • AmbassadorJ
    AmbassadorJ, May 20,  2021  9:21pm EST

    Welcome to the Network Kevyn57,

    I have had two open heart surgeries in the past 3 1/2 years to repair my mitral valve (MV). One in 2017 and the second open heart surgury in 2020.

    I've had a number of echocardiograms since 2016. Over that period of time my ejection fraction (EF) has varied significantly ranging from mid 30's (pre surgery) to 49 (post surgery). As Ambassador DN suggests, the results can vary based on the quality of the images, the reviewer, opinion of the cardiologist and your unique situation.

    My MV regurgation has changed too. Over the years it changed from mild to moderate to severe. Post surgery, it improved dramatically. Post surgery in 2017 the result was mild. Post surgery 2020 the result was trival to none.

    Kudos to you for paying close attention to your unique health issues. In partiicular, your EF and regurgitaion results. My cardiologists have also reminded me of the importance of paying attention to other symptoms, i.e. shortness of breath, light headiness, fatigue.

    Again, it sounds like you're paying very close attention to your health changes and test results. In my situation, I viewed this as a high priority, too.

    Please don't hesiate to reach out to this Network with additional questions. We're here for you.

    AmbassadorJ 

  • Burton
    Burton, May 24,  2021  2:17pm EST

    Yes. My experience was similar. Many years of stable echo results and then a decline which led to surgical repair . Maybe not as quick as yours, but the fact the cardiologist wants to see you in 6 months rather than a year means he believes you need to be watched more closely. 

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