5289pink
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5289pink, March 25,  2021  10:24pm EST

MVP Specialist in midwest

Hello! I have MItral Valve Prolapse and am looking for a specialist in the Midwest. I will travel farther, but would prefer that area. I'm having a hard time finding a dr who takes me seriously.

Thank you.

3 Replies
  • AHAModerator
    AHAModerator, March 26,  2021  9:14am EST

    Good morning,

    Thank you for being a participant in the patient support network! I am sorry to hear that you are having a hard time finding a doctor. If you visit the American Heart Association homepage and click on "In Your Community" on the right of the navigation bar, you will be able to enter your zip code and state to find your local AHA office. From there, they may be able to help you find a specialist.

    Please keep us updated on how you are feeling!

    Best wishes,

    AHA Moderator

  • AmbassadorDN
    AmbassadorDN, March 29,  2021  12:21pm EST

    Welcome!

    Our Support Network moderator has given you good advice. However, is your MVP a congenital malformation of the valve? If so, you may want to consider finding an Adult Congenital Heart Disease specialist, or an ACHD cardiologist. Type in your browser as well to direct you to specialists in your area. 

    I understand how difficult it is to find a good cardiologist; I had an amazing pediatric cardiologist who treated me for 21 years. Even his echo tech had told me when I went in for testing as a teenager: "Soon someday you will need an adult cardiologist, and you need someone who will understand your unique condition because most cardiologists will treat you as if you're eighty years old." I didn't realize how true that was until I had to find an adult cardiologist. Most cardiologists are trained to treat acquired heart disease as a result of age or lifestyle conditions. 

    Good luck on your search to find a good cardiologist! Keep advocating for yourself and realize that we are here for you at the Support Network to give you insight and guidance. Let us know how things turn out!

    To Heart and Soul Health,

    Ambassador DN

  • THoMC
    THoMC, April 8,  2021  12:51pm EST

    I found US News to have good ratings of hospitals by specialty. That was for me for aortic valve replacement. I don't know about your condition.

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