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rrussy86, August 7,  2020  3:02pm EST

I'm rare gen

Hi ๐Ÿ‘‹  I'm new at this but looking for support . My age has drs baffled at my issues . Ill list them below I cant seem to really find any information on Valvular Disease  my mitral, pulmonary,  aortic  and tricuspid  backflow  heart is ef 50%  my echo show mini heart attacks . I was born with a heart murmur and dr was told my mom I would out grow it .. the heart issue I have i got from both sides of family mom/dads . Im really fatigue all the time . I did develop cerberal small vessel disease. I run low on everything so dr hasn't done anything to help me. 


 Borderline prolong pr intervals
Sinus bradycardia
Aortic stenosis and calcification
Quadruple Valvular Disease ( backflow at mitral, pulmonary, aortic and tricuspid valves)
Pulmonary hypertension
Pkd ( polycystic kidney disease)
Frontal lobe atrophy
Cerebral small vessel disease 

2 Replies
  • AHAASAKatie
    AHAASAKatie, August 10,  2020  8:45am EST

    Good morning, I am so very sorry that you are managing this much! We have quite a bit of information regarding heart valve disease and treatments that I would like to share with you. If your doctor is unable to treat you, have you considered a second opinion? Best Katie

  • rrussy86
    rrussy86, August 10,  2020  9:07am EST

    Ty ๐Ÿ’– , yes anything that'll help please , I havent found anyone with all 4 regurgitating  is this rare to have i was born with **** and murmur but was to out grow , i know pkd affects the heart and brain . I wish I could say I could get another answer but due to insurance  that's the only dr ๐Ÿ˜”

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