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Tlcvegan, August 12,  2019  6:46pm EST


I got endocarditis from a doctor, either during surgery or treatment after my doctors think. I never showed signs of sickness but all the sudden my leg swelled and I had red dots on my feet then after two months it moved to my hand and then back and forth. My doctors ran several tests for infections and bacteria but couldn’t find anything. I was sent for some heart tests when they discovered something on the cusp or the aortic valve and it was destroyed and that is when all the doctors agreed in where it may have come from. They were also shocked I was walking 4-7 miles a day before surgery. However before the surgery my heart rate started to go up drastically to resting at 120. I had the surgery five months ago and I am back to working out but all the Sudden the heart rate increased again, even on heart rate meds. They have run more tests and imaging and say they look fine so now they are looking at hormones and thyroid. I also just turned 40. I was wondering has anyone had valve replacement due to endocarditis? What valve? How did you get the infection? How long was your recovery? How old are you? Have you had heart rate issues?

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  • AHAASAKatie
    AHAASAKatie, August 15,  2019  7:35am EST

    I am so sorry that you are having to manage this. I can share what we have on heart valves and endocarditis with you. Please let me know if this is helpful or not. Best Katie

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