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Baby born Truncus arteriosus
Great Grandson born 07/06/19 with Truncus arteriosus missing chromosome 22q11.2 DiGorge Syndrome. Heart surgery on 07/11/19 and in ICU. Surgeons happy with surgery and did not leave incision open in case of complications. Today is 07/30/19 the hole where the missing ventricle was replaced had opened and is bigger than before. He is in heart catheterization now and scheduled for another major open heart surgery.
My question is how can this happen? I can find nothing on the internet about this and these surgeries are usually very successful. How can that hole reopen? I cannot comprehend this. He was treated at Emory Egleston Hospital for Children a top Hospital here in Atlanta.
Does anyone here have any information on a complication like this? Any knowledge would be appreciated. Thank you.
AHAASAKatie, July 31, 2019 9:03am EST
Good morning, this is well out of my wheelhouse of conditions to help with. However, the US National Library of MedicineNational Institutes of Health has a good abstract on Truncus arteriosus communis associated with chromosome 22q11 deletion. Please let me know if this is helpful at all. Best Katie